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Old 07-24-2017, 09:59 PM #1
becazican becazican is offline
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Originally Posted by janieg View Post
I'm going back to a neuro for the first time since 2014, so I'll find out how crazy this one thinks I am. My other one is semi-retired, and it would take 8 months to get an appt with him, so I figured I'd try someone else. Maybe they'll have more ideas.

So the only thing they've found metabolically with you is elevated B6 and elevated A1C? From my research, I know that even people who are pre-diabetic can get neuropathy from it, but my understanding is that it's not full body. It classically starts in the feet and moves up to the legs. Mine is full body. I even have weirdness in my scalp and face.
Also found out that bilaterallly l4 l5 and l5 s1 are sitting on my nerves with moderate stenosis. My second opinion is next wed with another neurologist I'm sure she will look at me like I'm crazy.
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Old 04-15-2018, 04:12 PM #2
German German is offline
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Hi Guys,

I am male 34 and from Germany and I finally found someone with my symptoms.

It started almost one year ago with a buzzing sensation in my right foot 1 sec buzz 1 sec off). This lasted for 5 days paused for approx. 2 weeks and came back the same way. It always was better in the morning and became worse over the day. Some days later I noticed that the feeling was somehow related to touches. If i wore long trousers it feels strange, if I wore shorts it was almost gone. After 2 months I realized that when I touch my leg (up to the beginning of my bottom) i get this buzzing sensation in my foot, right side worse than left side.

Neuro thinks it could be anxiety but he cannot exclude some central or peripheral nerve issue. Tibialis-SEP is delayed on the left side (but was already on the first date at the neuro when my symptoms were only on the right side). Furthermore, neuro exam was fine. Since the neuro did not suspected something "severe", I did not have a MRI. So I accepted this problem until I found this posting...

Do you have any new findings?

Thanks a lot!
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Old 04-15-2018, 05:15 PM #3
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janieg janieg is offline
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Nothing new here, German, but welcome to our little club.

My new neuro had no new ideas. She ordered another brain MRI since my previous one showed a "non-specific finding" surrounding a subtle signal abnormality on the right side of my corpus callosom. The MRI showed the same thing, but no worse, so it was just another shrug.

Do you have any problems with your back or neck?

Quote:
Originally Posted by German View Post
Hi Guys,

I am male 34 and from Germany and I finally found someone with my symptoms.

It started almost one year ago with a buzzing sensation in my right foot 1 sec buzz 1 sec off). This lasted for 5 days paused for approx. 2 weeks and came back the same way. It always was better in the morning and became worse over the day. Some days later I noticed that the feeling was somehow related to touches. If i wore long trousers it feels strange, if I wore shorts it was almost gone. After 2 months I realized that when I touch my leg (up to the beginning of my bottom) i get this buzzing sensation in my foot, right side worse than left side.

Neuro thinks it could be anxiety but he cannot exclude some central or peripheral nerve issue. Tibialis-SEP is delayed on the left side (but was already on the first date at the neuro when my symptoms were only on the right side). Furthermore, neuro exam was fine. Since the neuro did not suspected something "severe", I did not have a MRI. So I accepted this problem until I found this posting...

Do you have any new findings?

Thanks a lot!
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Old 04-15-2018, 07:32 PM #4
caroline2 caroline2 is offline
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OP: I just had some on and off buzz in one of my feet a few weeks ago and it's gone. I tried to shake it out etc and it kept going but I notice now it's gone. I'd say the nerve damage issues I deal with are from 2 surgeries I've had and advancing osteoarthritis. I live with it and don't go seeking doctor's advice...they don't know. I've learned more here than anywhere and with supplements I take...and for me I'm aging. I don't take meds per se, but the couple I do take, who knows if they cause some of the nerve issues.
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