This is why I offered other options...like the Cellcept. Or doing the phone consult with Birnbaum (if he and her doctor would even participate). You may not have gotten much benefit from Cellcept, but you are still taking it, so it must be doing something good. She has A.S., so this may help that as well. And I did have positive benefit to neuro pain/symptoms when I tried it for several months before having to stop due to the infection (caused by a different issue). Certainly worth trying!!

I wonder if the US went to a national health system, like the UK whether we would no longer be offered the treatments we get now? Scary thought as the US tries to get a handle on it's health care crisis. I fully believe that your doctors in the UK know (without a doubt) that these treatments are effective. There is so much data on this...and GOOD doctors read up on new treatments (and IVIG has been used for this for YEARS). It comes down to money and NHS can't offer treatments like this. My IVIG costs about $32,000 USD a treatment each month!!! I'm sure it would be hard for a doctor to tell a patient that there is an effective treatment, but they can't have it.