I also get the raynauds stuff from this sfn. It is part of the temperature dysregulation that comes with autonomic nerve damaged. The nerves don't allow the body to cool it self or stay warm. I can't deal with temps out of the 68-78 F range. With the fall here in New York, I have to wear two sweatshirts and a carry around a hot rice pack with me in the house.

Thanks Healthgirl. Do you get colour changes such as Livedo Riticularis on your feet when exposed to air? Mine has become very pronounced - my very fair feet almost turn blue black in places now when I’m changing for the shower or bath. I’m feeling more confident that all this represents a slow worsening of my SFN from painful to numb. And I agree about the autonomic nervous system being kaput!

The nerve damage from my Profound Peripheral Neuropathy causes difficulty with the small capillaries in my feet.

My toes are dark purple most of the time. If I expose them to hot water they blanche white.

Since the circulation is markedly impaired my feet are usually icy cold.

Of course I can't actually 'feel' them very much. The sensation I 'perceive' is more like burning. But when I touch my feet that are frighteningly cold.

In addition, my feet feel rather like I have ski boots on. So when I try to get under the covers, I get tangled up with my feet and have a hard time sorting things out. I do it best by looking at my feet so I can untangle the covers.

Wearing socks to bed helps a great deal with the discomfort.

I have severe SFN in my upper body (take 3600 mg gabapentin for the pain) but I don't have any problems with anything like Raynaud's in my hands.

It is the Profound PN that cause this problem in my feet.

I must take great care with my feet because injuries heal very very slowly. Usually it take three or four months for the smallest scrape to heal completely.

Regards, ElaineD

Thanks Elaine.