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Old 11-15-2017, 01:08 PM #1
Ragtop262 Ragtop262 is offline
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I had an acute onset, similar to yours (but not quite as bad) about 3+ years ago. Things stabilized, then got somewhat better over a few months, but I do continue to have some relapses now and then and things get worse for a while. Just make sure you go back to the things you think may have helped you initially, and hopefully things will get better again.

Unfortunately, this is a bit of an unpredictable disease that we are battling. I hope you get back on the road to improvement soon.
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Old 11-15-2017, 08:43 PM #2
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I had a really bad week last week...the worst in a very long while...and I'm assuming it was stress-related. I started a new job, and even though it's a very good thing, it had me wired.

At one point, my resting heart rate was stupidly high and I was having palpitations, so I took 10mg of propanolol, a beta blocker Don't you know my neuropathy symptoms waned right along with the cardiac symptoms? I know it suppresses norepinephrine which hits your nervous system, but I was pleasantly surprised at how much it helped. Unfortunately it also dropped my distolic blood pressure to 49-55.

I found this which was an interesting read.

Propanolol (Inderal) in Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS) - Health Rising
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Old 11-17-2017, 05:14 PM #3
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Quote:
Originally Posted by Ragtop262 View Post
I had an acute onset, similar to yours (but not quite as bad) about 3+ years ago. Things stabilized, then got somewhat better over a few months, but I do continue to have some relapses now and then and things get worse for a while. Just make sure you go back to the things you think may have helped you initially, and hopefully things will get better again.

Unfortunately, this is a bit of an unpredictable disease that we are battling. I hope you get back on the road to improvement soon.
Thank you for sharing this, Ragtop. This is my first relapse since I started getting better and it has got me really scared. I though I had a chance to recover adn then this happened. Still, I am not giving up.

As far as I understand, you are saying that you have relapses but that you also recover somewhat? I am still trying to figure out what one can expect to regain if recovery happens.
Indeed it is unpredictable. Do you know what caused your onset?
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