I feel your pain. The second neurologist i saw is a SFN specialist and he dismissed my symptoms as well. I trusted him until my toe went numb. Push for the skin biopsy and I pray it comes back negative.

Side note, I also understand your concern about your wife and future child. I have 2 children (1 & 3 years old). My daughter was planned when my doctor told me it was BFS and nothing to worry about... Now with my SFN diagnosis, I worry about how i will take care of them if this progresses. My wife does not make enough to sustain our family. This bothers me more than the disease...

With that said, it might be a good idea to get/increase your disability insurance prior to a skin biopsy. This way you lock in your rates at a low amount, instead of paying a premium or getting rejected post diagnosis.

Hey man thanks for the tip...I’m in the uk I don’t think it’s as easy getting a biopsy I did ask the neurologist a few days ago and he said privately it will cost £2,000..Can I ask what your symptoms are now?have they progressed since u first got this?my symptoms are predominantly in my hands..I really do hope the neurologist didn’t take my symptoms as anxiety because the pain is real.

Hi there. I'm in UK too. You need to see Proff Annand at Hammersmith Hospital for the biopsy. It's done on NHS. Where are you being seen in London?

For all this nerve damage and issues, I wouldn't ignore Grape Seed Extract which works on all circulation issues in the body. I've been working with supplements for 25 yrs thru thick and thin of it all.

There is a supplement thread at the top of this page that lists a lot of supplements used by members.

I am seeing prof Anand on Tuesday next week. I was wondering if I could speak to you Lou Lou? I am going for Suspected SFN and have some questions if you don’t mind?