Quote:
Originally Posted by Burnsie
Whats POTs?
I am sorry you are suffering. I suppose the only hope is, that as you're sti;l young, all the medical advances will one day be able to help (I know not a lot of money is spent on SFN research, but maybe MS research will hold a key).
In terms of me? Well, I haven't really noticed it during the weekend, and had to think about it a couple of times (it's still there of course).
So, given my sentence above compared to how much pain you are in, why should a GP give me an appointment to get a skin biopsy when there are so many people more needing than myself. I wouldn't and shouldn't!
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POTs is where your heart rate increases when your standing or exerting more than it should. So say I’m laying down my HR is 60-80. Standing I jump to anywhere between 100-120 and if I get hot or exert myself like getting dressed, it skyrockets. Some people pass out. I’ve come close but I don’t. It’s ehere the small nerve fibres have affected your Autonomic nervous system.
If oh want the biopsy why don’t you go for it? Could find a cause and potentially stop any progression?
06-27-2018, 08:31 AM
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