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#1 | ||
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Junior Member
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Doc also gave me gabapentin does it work??
If so, what are the regulations with drinking? I don’t drink a lot but have an occasional glass of wine.. |
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#2 | |||
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Member
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Just a few random thoughts expressing my opinions only...
Anxiety and stress when the condition first develops will make the symptoms 10x worse. First and foremost, do whatever you can to try not to stress about it. If it helps, I'm almost five years into the onset of my symptoms, and it has not worsened. My symptoms have morphed and changed, but they don't disrupt my life unless I'm having a flare and am uncomfortable. I'm definitely not in the agony I was when it first developed, and I was horribly stressed out about it. Secondly, if your symptoms are not horrible and not impacting your life terribly, consider gabapentin to be optional. Neuros will always prescribe it to try to help with symptoms, but as with any drug, there can be ramifications. There are stories here on Neurotalk of people trying to wean themselves off it. Be sure you understand all the possible side effects so you can make an educated decision on whether to go down that path. I opted not to and am happy I did. Should my symptoms ever get worse and I do need to take something, I will have that to fall back on. For right now, though, it's not necessary. |
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#3 | ||
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Junior Member
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Ok, thanks I am going to try it for now and see if it helps. I am willing to try anything at this point.
Its hard to not let it disrupt my life. I feel like crap and worried constantly about what it could be. I have been taking klonopin every other day to help with some anxiety. I see you are from Maryland, what area? do you like your Nuero? Quote:
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#4 | ||
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Junior Member
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I forgot to mention my MRI came back clear.
next step is EMG test and b12 injection, she said she would closely monitor my symptoms. I just feel like thats not good enough! Is it normal to feel this bad, and them tell you they dont know what is happening?! Quote:
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#5 | |||
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Member
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I live north of Baltimore, and go to a neuro at Franklin Square. Initially I saw the head of neurology there, but he's semi-retired now. I do like the one I see, but with all tests normal, she has no ideas either. And to answer your question, it's not at all unusual for them not to have a clue what the cause is.
I've had MRIs on my brain, neck, thoracic spine and lumbar spine, as well as a spinal tap, nerve conduction study, EEG, and multiple rounds of blood work. The brain MRI and lumbar MRIs were repeated this year as it had been four years since I'd had them. The only abnormalities are a non-specific signalling anomaly in my brain that hasn't changed in four years, and evidence that my leg nerves are being impacted by degeneration in my lumbar region. The latter is not a cause of the neuropathy. |
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