my advice is to stop freaking out. It's not helping. If your pain level is only a 1 and you still have feeling in your foot - you will most likely be just fine. Trust that your doctors will help and if they can't or you don't trust them - it's best to see a specialist in the vascular field as I have come to find out - neurologists suck at neuropathy. And whatever you do... Do not start anti-seizure meds or depression meds for neuropathy because in my experience - the side effects have actually made the condition worse.

Miss D,

Thanks for responding. You make a good point. I have REALLY gone overboard in my reaction to this. I've been pretty good today. My PCP actually called me today and I could sense there was a bit of disappointment in his voice that he could not help right away with this. He did recommend I go back on Prozac due to all the anxiety this is causing me. I quit it cold turkey last year. I can't rely on Xanax as it's a very short-term fix. I have anxiety and OCD issues.

I have made an appointment with a neurologist for next Friday. It's the same guy I saw two years ago.

My PCP did mention that the neuro might put me on gabapentin since I have the mild, intermittent pain. I told him that with the pain being a "1" that I have no interest in going on an anti-seizure med. I told him that the important thing to me is to find the underlying CAUSE.

I haven't felt like my 'normal' self in two or three weeks. However, this week I am doing much better. I just have to be patient. It's hard not to think about it most of the day. PCP thinks this may go away on its own. How nice that would be. I can't imagine having to live with this the rest of my life. I can't help but sometimes think this will lead to loss of mobility and I'll end up in a wheelchair.

My big problem is wanting answers and a solution NOW! Yeah, I know it could be worse, but that's not the comforting thought I'm looking (for).

I'm almost five years into idiopathic, full body, neuropathy. My feet and lower legs bear the brunt of it, but I have symptoms all over. I have all kinds of weird sensations in my feet and legs. Sometimes it feels like my legs are wrapped in cellophane. Virtually all the time, it feels like my socks are bunched up under my toes.

I've had every test under the sun, and nothing showed up as a potential cause. My neuro just did a nerve conduction and EMG on my legs to make sure there was no sign of large nerve/motor involvement, and there's nothing. So five years of this crap, and it's all still just sensory.

Try to calm down and not freak out...it'll make things 1000x worse. It's not a bad thing to want to find a cause, and I still try, but don't let it consume you, and certainly don't allow it take the joy out of your life.