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02-07-2019, 01:42 AM
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#1 | |||
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Grand Magnate
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Hi Findmynerves
Welcome to NeuroTalk  .The PN forum is very active so I am sure that you will get lots of support and good ideas from other members. Best wishes.
__________________
Knowledge is power. |
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02-07-2019, 07:14 AM
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#2 | ||
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Magnate
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--it might more accurately be called a neuronopathy, involving the cell bodies as well as the axons, and that opens up a different set of investigations as to cause, which include a number of autoimmune and other conditions:
Sensory Neuronopathies |
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| "Thanks for this!" says: | echoes long ago (02-07-2019) |
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08-29-2019, 10:25 PM
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#3 | ||
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Newly Joined
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I was just diagnosed with NLD-SFN. I thought that it is distinct from SN /G. One is responsive to IVIG, the latter has been deemed refractory.
Could you clarify? neuropathy and neuronopathy are similar sounding but different in my understanding. Having been diagnosed with the former, I am eager to have a clear understanding. Thanks. |
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08-30-2019, 06:41 AM
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#4 | ||
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Magnate
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--what is referred to as neuronopathy involves the primary compromise of the cell bodies of neurons, whereas neuropathy involves the primary compromise of the axonal endings, or the myelin sheathing that covers "large fiber" nerve cells.
Of course, if the cell bodies are compromised, the axonal fibers won't fare well, either. But that is a different process from the usual description of neuropathy as "die back"--this process is more like a "die forward". |
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| "Thanks for this!" says: | echoes long ago (08-30-2019) |
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