Go Back   NeuroTalk Support Groups > >

Small Fiber Neuropathy (SFN) Odd Symptom

Reply
 
Thread Tools Display Modes
Old 04-17-2019, 05:49 PM   #1
lgregs
Newly Joined
 
Join Date: Apr 2019
Location: Dallas
Posts: 2
Question Small Fiber Neuropathy (SFN) Odd Symptom

I am in the process of being diagnosed with Small Fiber Neuropathy. I had a biopsy last week and am still waiting for results, but based on my symptoms and discussion with my neurologist it is the likely culprit. My symptoms are numbness, tingling, itchiness, pain, etc. like "normal". But one thing that's really throwing me off is the loss of sensation. For some reason, I only have major loss of sensation on the LEFT side of my body. From the top of my head to the bottom of my feet. It's like there's an imaginary line down the literal middle of my body. I have a left hip injury due to this and I walk kind of crooked. It's to the point where I've noticed I can taste better on the right side of my mouth compared to the left. I do have some sensation loss on my right foot, but between the two sides it's like night and day. What I want to know is, has anyone else heard of or experienced this? I had a lower back injury back in 2012 (on the left side) that was never really dealt with, and while it did get better it still hurts from time to time. I'm thinking about maybe getting a lumbar MRI, but wanted to see if anyone else had dealt with this symptom. If you've read this far, thank you! I appreciate any and all help.
lgregs is offline   Reply With Quote
Old 04-18-2019, 03:30 PM   #2
pinkynose
Member
 
pinkynose's Avatar
 
Join Date: Jul 2015
Posts: 500
Default

Hi and welcome.
Small fiber neuropathy is a type of Peripheral Neuropathy. A punch biopsy will only confirm that you have SFN. Unfortunately it's really not the culprit as it doesn't give you the cause for your symptoms, which is what you are after.

I don't know what tests your neurologist has done so far, but there are a bunch that should be done imo. Numbness or loss of feeling is most commonly associated with some type of nerve damage, irritation, or compression, so MRI(s) would be helpful anyway, but more so since you had a back injury. There are a number of other reasons and possible diseases (not trying to scare you) that could cause it. Your doctor needs to rule out whatever they can as soon as they can. That way you have the chance to be able to treat the cause rather than medicate the symptoms.

Many people never can find the cause for their symptoms. It's not the end of the world. There is a wealth of information that can be searched here to help you with supplements, drug therapy, diet, etc.

I do not have loss of feeling as part of my SFN but that doesn't mean it's not part of the disease. There are many members that have SFN as well as other types of Peripheral Neuropathy. Hopefully some will chime in.

I received so much information from members on this forum a few years ago. Unfortunately it doesn't appear to be very active now. I wish I had more information to share. You can try using the "Search" feature that's located on the blue scroll bar on the top of the "Peripherical Neuropathy" forum. I spent many hours reading posts when I started.

I hope this helped!

Quote:
Originally Posted by lgregs View Post
I am in the process of being diagnosed with Small Fiber Neuropathy. I had a biopsy last week and am still waiting for results, but based on my symptoms and discussion with my neurologist it is the likely culprit. My symptoms are numbness, tingling, itchiness, pain, etc. like "normal". But one thing that's really throwing me off is the loss of sensation. For some reason, I only have major loss of sensation on the LEFT side of my body. From the top of my head to the bottom of my feet. It's like there's an imaginary line down the literal middle of my body. I have a left hip injury due to this and I walk kind of crooked. It's to the point where I've noticed I can taste better on the right side of my mouth compared to the left. I do have some sensation loss on my right foot, but between the two sides it's like night and day. What I want to know is, has anyone else heard of or experienced this? I had a lower back injury back in 2012 (on the left side) that was never really dealt with, and while it did get better it still hurts from time to time. I'm thinking about maybe getting a lumbar MRI, but wanted to see if anyone else had dealt with this symptom. If you've read this far, thank you! I appreciate any and all help.
__________________
"Sometimes I've believed as many as six impossible things before breakfast." Lewis Carroll
pinkynose is offline   Reply With Quote
Old 05-06-2019, 02:38 PM   #3
lgregs
Newly Joined
 
Join Date: Apr 2019
Location: Dallas
Posts: 2
Default

Quote:
Originally Posted by pinkynose View Post
Hi and welcome.
Small fiber neuropathy is a type of Peripheral Neuropathy. A punch biopsy will only confirm that you have SFN. Unfortunately it's really not the culprit as it doesn't give you the cause for your symptoms, which is what you are after.

I don't know what tests your neurologist has done so far, but there are a bunch that should be done imo. Numbness or loss of feeling is most commonly associated with some type of nerve damage, irritation, or compression, so MRI(s) would be helpful anyway, but more so since you had a back injury. There are a number of other reasons and possible diseases (not trying to scare you) that could cause it. Your doctor needs to rule out whatever they can as soon as they can. That way you have the chance to be able to treat the cause rather than medicate the symptoms.

Many people never can find the cause for their symptoms. It's not the end of the world. There is a wealth of information that can be searched here to help you with supplements, drug therapy, diet, etc.

I do not have loss of feeling as part of my SFN but that doesn't mean it's not part of the disease. There are many members that have SFN as well as other types of Peripheral Neuropathy. Hopefully some will chime in.

I received so much information from members on this forum a few years ago. Unfortunately it doesn't appear to be very active now. I wish I had more information to share. You can try using the "Search" feature that's located on the blue scroll bar on the top of the "Peripherical Neuropathy" forum. I spent many hours reading posts when I started.

I hope this helped!

Thank you so much! I really appreciate your response. I've had my biopsy and it came back negative for SFN :\, so back to the drawing board.
lgregs is offline   Reply With Quote
Reply

Tags
body, dealt, left, loss, sensation

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Post-Flu Vaccine Neuropathy (Possible Small Fiber Neuropathy) tarheel15 Peripheral Neuropathy 27 09-02-2018 11:00 AM
small fiber neuropathy symptom patterns davidl Peripheral Neuropathy 10 06-05-2013 07:08 AM
Newly Diagnosed - Small Fiber/Large Fiber Neuropathy! Please Help! JoshuaY46012 Peripheral Neuropathy 16 07-02-2012 03:46 PM
Small Fiber, Large Fiber & Autonomic Neuropathy Loves Pappilions Peripheral Neuropathy 9 06-01-2011 09:02 AM
Small Fiber Neuropathy (or Length-Dependent Neuropathy) plgerrard PN Tips, Resources, Supplements & Other Treatments 1 05-09-2010 06:56 AM


All times are GMT -5. The time now is 03:39 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy