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Old 05-06-2019, 09:02 AM #1
CRPSinSC CRPSinSC is offline
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CRPSinSC CRPSinSC is offline
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There are 4 people on one side of my family with CRPS and we all take Gabapentin. Our doses vary wildly. Two take more than 2000mg a day. I take 600mg in the morning and 600 at night, which is, according to my doctor, a rather low dose for what we have. If the dose you're on isn't working, I am sure your doctor can increase it, if the med. is helping you.
I didn't like Gabapentin, or at least thought I didn't, so my doctor, over the course of a couple years, tried many of it's "cousin" type drugs on me (ones that would accomplish what Gabapentin did, but maybe not make me so sleepy). After trying many "cousin" meds which gave me other worse symptoms or just plain didn't work as well, I went back to Gabapentin and found a dose I could function with. My relatives can take a lot more of it than I. So, I established that it's the best (at least for all in my family) in that category, and that the dose is more based on what is needed, person to person, to accomplish the needed effect.
I hope my experience with this medication will help you some. My dad also took it when he had a specific bad injury, and he called it a lifesaver. He isn't taking it anymore, but raved about it when he took it.
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Old 05-06-2019, 01:43 PM #2
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I must be the only human alive that cannot take Gabapentin. I used to be able to. When I was first diagnosed (2005/2006) with MS I took roughly 600 mg a day. It made me light headed but other than that no terrible side effects. I stopped taking it around 2010 for reasons I can't remember other than simply not needing it anymore.

Fast forward to 2017. I was dx it again and had the most terrible reaction to it. I was loopy, talking like I was drunk. Couldn't form a cognitive sentence. I have no idea why I couldn't take it again.

I tried taking it just a couple of weeks ago and still couldn't take it. Same symptoms as 2017.

Why couldn't I take it a gain? I tried stopping other meds I was taking with it and it wasn't them. ??? Strange but I won't take it again.
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Old 05-07-2019, 05:31 PM #3
KnowNothingJon KnowNothingJon is offline
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I had terrible side effects from gabapentin, less so from lyrica, though still more than I felt was worth it. I don’t need to forget simple words, but that was gabapentin and lyrica slightly less effect on me.

I am part of the NYS medical marijuana program now abd while it is incredibly expensive, my family and I are clear about the benefits for me. I dropped lyrica and topamax and I am ever so slowly reducing my tramadol usage.

If need be I’d try lyrica again or its next stage analog, but I am happier now thanI have been in all the time leading up to the med change.

It was not just the mmj, but coming to terms with illness and also ceasing my endlessly beating myself up for being ill.

I know one thing though, the way gabapentin made me feel, I’d never try it again.
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