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Old 06-27-2019, 11:49 AM #4
Sassafrass Sassafrass is offline
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Join Date: Jun 2019
Posts: 8
5 yr Member
Sassafrass Sassafrass is offline
Junior Member
 
Join Date: Jun 2019
Posts: 8
5 yr Member
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Thank you for your responses!

Yes, my MTHFR has been diagnosed via testing. Hetero for C677T.

He was not more specific about mitochondrial dysfunction. But the supplements he suggested to me are contained in PubMed studies for mitochondrial dysfunction.

I do not believe that my symptoms are consistent with either of the suggested conditions of CRPS or Causalgia. Not even CMT. My symptoms are intermittent, all over my body, covering multiple organ systems, changing in presentation consistently across all tissues, not to return to the previous symptoms, and are not limited or connected to my surgical site. I have seen three neurologists who don't know what to make of it.

Each occurrence of burning skin was preceded by taking antibiotics. But they were also all preceded by significant amounts of physical and mental stress from a complicated hip surgery.
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burning, meds, mouth, neuropathy, weeks

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