there are very active facebook groups out there with 1000s of members.

that will be another good place to gain advice/support

there is also a UK specific one

--that the Facebook groups generally don't have the depth of knowledge that this site has in its database, nor the number of well-informed people.

There seem to be a lot of people on them peddling whatever cure-du-jour has recently been publicized; at the best those have limited success for some people in some circumstances, at worst they are snake oil.

I do agree that social media has absolutely cut down on the activity here at Neurotalk, but this is still a better place to come for analytic commentary and educated suggestions.

Guys as you have read I was diagnosed late .... In the UK on NHS they would only give you immunoglobulin if you were " off your feet ".... my neurologist told me I would just have to get on with it.. recovery 2 years... lots of exercise and healthy diet.... especially a lot of folic acid and B12.... Now the 2 year recovery ... nerves do not repair fast and I still have bouts of symptoms sometimes .... the large fibre motor nerves repair very slowly ..... Now my question is would immunoglobulin still help now ... even though the worst is over.... would it at least help reduce the recovery ... ? as I said I still have episodes of symptoms although nowhere near as bad as the initial attack in jan feb early march... I am only in Month 5 of the 2 year recovery ... It is not nice.. ups and downs..