Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 09-14-2020, 11:38 AM #2
echoes long ago's Avatar
echoes long ago echoes long ago is offline
Senior Member
 
Join Date: May 2008
Location: new york
Posts: 1,589
15 yr Member
echoes long ago echoes long ago is offline
Senior Member
echoes long ago's Avatar
 
Join Date: May 2008
Location: new york
Posts: 1,589
15 yr Member
Default

I am very skeptical of the diagnosis of conversion disorder. I cannot speak for the UK, but in the United States it is diagnosed mostly in the south and very rarely in the north.

From personal experience, a guy i worked with , his wife just suddenly started experiencing many neurological symptoms. literally overnight. They had moved upon his retirement from new york to north carolina. After testing she was diagnosed with conversion disorder. She was given psychological therapy over the course of years, however she kept getting worse. I kept telling him, after researching, that she has symptoms of a stroke.

Finally after years of no progress, he took her up to a hospital back in new york It turned out she had had a stroke. Unfortunately the window of time in which she could have beenhelped with the proper treatment and therapy for stroke was wasted on that conversion disorder diagnosis.

It seems to be a diagnosis they grab hold of when they have no idea what is actually going on.


Have you had testing for small fiber neuropathy?


Quote:
Originally Posted by LeedsLad84 View Post
Hi everyone

I just wanted to ask those with much better knowledge than me on something that I have been wondering since my last Neuro appointment, and unfortunately I don't have another one in the diary at present.

Just for context, my query is in relation to this wording from my Neuro on current diagnosis:
The working diagnosis here is that of a post-infectious neuropathic syndrome which seems to affect small fibres and to a lesser extent large fibres. These are functional abnormalities as structurally the nerves are normal, neurophysiologically. (Detailed neurophysiological studies looking for abnormalities of large fibres but also small fibre were normal. )

My impression is this is a monophasic type illness and should resolve with time.
So I *think* it sounds like my ACTUAL nerves are fine and there is no damage, so if this is a functioning issue, does this mean what he is describing is akin to functional neurological disorder? Functional neurological symptom disorder: Symptoms and treatment seems to explain it well.

I have read all about myelin sheath, axons, etc. but now wondering if these areas are not actually an issue.

It's all very confusing as he has mentioned neuropathy which I thought was damage/inflammation. I am taking a bunch of supplements at the moment and wondering whether it's actually worthwhile if structurally everything is alright.

Both neuros I've seen have told me what I have should resolve with time, but it's been 7 months now and it seems like a long time to me....

Probably slightly more sensitive to it after having a pretty torrid weekend with pins and needles all over, especially my face. That was after having 1-2 really good weeks with very reduced flare ups.

Thanks in advance!
echoes long ago is offline   Reply With QuoteReply With Quote
 

Tags
abnormalities, fibres, functional, time, wondering


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Structural abnormalities? copelsa Epilepsy 4 02-23-2013 02:10 PM
Neurological Abnormalities?? misshayleesmom Multiple Sclerosis 5 05-24-2012 08:29 AM
pathological gambling has functional abnormalities underlying it olsen Parkinson's Disease 3 12-15-2008 12:40 PM
anyone know anything about central abnormalities Dmom3005 Bipolar Disorder 5 06-27-2007 11:50 AM


All times are GMT -5. The time now is 09:32 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.