Welcome, HaveMercy,
I can't come up with any answers for you but I hope that your appointment with a neurologist was helpful.

Quite often some medicine a person is taking turns out to be the problem--but you don't mention taking any.

Best wishes to you and your family.

Hi Agate,

Thanks for the support. My appointment with my Neurologist was not that great really. He seemed unconcerned and said it sounds like non length sensory neuroptathy. He gave me a script for blood test and and cymbalata. I am now looking for a 2nd opinion.

The only thing I was taking before my condition started was taurine, L-argine, and L-caratine amino acids, and some vitamins. No prescription drugs. I have since stopped those with no change.

My symptoms are the same now 3 weeks into this.. Full body parathesia, and burning pain in my feet.

HaveMercy, you've seen the neurologist only recently. Neurological disorders sometimes take time to improve--or even to be figured out. Why not give the Cymbalta a chance? It seems to be a standard treatment for the condition your neuro has diagnosed, and it just might help. In case you haven't looked at the information about it:

Cymbalta Uses, Dosage, Side Effects & Warnings - Drugs.com

And here's am abstract of a fairly recent article about the diagnosis and treatment of small-fiber neuropathy:

Diagnosis and Treatment of Pain in Small Fiber Neuropathy

Hello, I have been just diagnosed with small fiber neuropathy this past Monday. It was through a nerve/skin biopsy that my neurologist gave me.
For a year in a half my primary thought it was anxiety and it never was.
My symptoms are sever from balance issues and tremors throughout the body 24/7 for a year plus. I even get tension in the face area.
I have just started Gabapentin and they are trying that first. The neurologist has no idea what sparked this all my blood tests were great and all other levels of tests were great.
Does anyone else feel the same all day every day?

Welcome, skbing5390,

Although I haven't had any experience with small fiber neuropathy, I'm sure there will be someone here who can help you.

You might get more replies if you posted a thread of your own.

Welcome skbing5390.

I went to the neurologist in town following my general practitioners referral. He said small fiber neuropathy. He was not a specialist. I looked for a specialty clinic on my own and asked a neurologist to send the referral. I just had that visit about 10 days ago. They did a couple additional blood tests and nothing came up. They did EMG and NCS. Nothing came up. I wasn't expecting anything because I was suspecting small fiber neuropathy and that is not measured with those tests. But they also did do the skin biopsy. My skin biopsy shows axonal swelling in the distal site. They are increasing my nortriptyline to 25 mg a day. This is still a small dose and most literature doesn't find nor tryptoling better than placebo. They're also starting me on gabapentin. The doctors warned me that gabapentin doesn't really do much for small fiber neuropathy. I've done lots of research. I am in my 6th decade. Literature seems to say that it can arise in people of a certain age. And 30 to 50% remain without a known cause. You can find hopeful paragraphs in literature that say it will plateau. You will also hear horror stories at some people lose all sensitivity in all of their skin. Getting the skin biopsy has actually made me more depressed. I obviously knew that something was wrong. Anyone can read my initial post. But just seeing that pathology was found, ie axonal swelling makes it all too real. When axons swell it is often a prelude to further degeneration. So the question for me will be how widespread will this ultimately go. I hear people's suggestions about stopping sugar, stopping alcohol, etc etc. I have not made any real life changes yet. Sometimes I think we should do like Caroline and avoid the doctors and simply live our lives. I wish you best of luck. We have to make a choice when we are faced with going down the rabbit hole of traditional medicine or avoiding it all together. I do have a follow-up appointment with the neurology clinic in May. I will go I suppose. But something deep inside of me tells me that this will play out however it is meant to. Learning to live life in the moment is more important now than ever.

Hey skbing,

Good morning and welcome.

Sorry to hear of your symptoms.
I am interested in your dizziness and facial symptoms. I wonder if they are unrelated to your SFN. Do you get temporal or occipital headaches too? ( side or back of head) Do you get tightness in the neck or shoulders?

Atty

The official diagnosis is Chronic Idiopathic Polyneuropathy (CIP). I've had it for 30 years. Little research in this country. Researchers can only positively say the condition worsens with age, and it has. My feet are always numb, sometimes with extreme burning pain or pressure, accompanied by dizziness and brain fog. After radiation for prostate cancer, it got worse, going from chronic to acute, migrating throughout my body. Was it aggravated by radiation? Possibly, but the I in CIP sands for "idiopathic. Meaning medicos have no clue what causes it. There is as yet, no real treatments.

I went on a strict plant based diet for a year. It got worse. Medical marijuana--same results. Recently when it went acute causing anxiety, I called my psychiatrist who treats my ADHD. He immediately called in 10 mg. Remeron to help with sleep and diminished appetite and ½ mg Xanax 3X a day if CIP goes acute. My PCP upped Gabapentin to 600 mg. 3 times a day. Along with daily prayer and meditation, I haven’t had an acute case in over two weeks.

Welcome, Wade Senior!

Congratulations on possibly having found the path to being free of pain. I hope your good luck will hold.

Sometimes with pain I find that I have to try first one thing and then another and keep on tinkering until I find something that works.