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Old 06-10-2021, 08:36 AM #1
JimD JimD is offline
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JimD JimD is offline
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I am in a not an exactly similar situation but somewhat relevant I think. I developed SFN 5 years ago out of nowhere. I was 50 at the time with no health problems. After months of every blood test, EMG, QSART, etc., no reason for it could be found. After about a year it started fading and for the past 4 years I would have a flare up which would last a few days and then I would go back to normal for months at a time. When I say flare-up, I mean tingling feeling up to my knees, burning feet, and some numbness and pain when I walk. Well, I had COVID back in March which lasted 3 weeks. 2 weeks after I recovered, I had what I though was a flare-up as I woke up one morning with the tingling and it progressed to the usual symptoms. I had not had a flare-up for 6 months before this. I got the Moderna vaccine at the beginning of May and had my 2nd shot on May 29th. I am now in my 7th week of this flare -up and it shows no signs of going away. Did the virus bring it on? Did having the shots keep it going? Will it go back to normal? I drive myself crazy with these questions that NOBODY ever has the answer to. I have been on varying doses of Gabapentin for 5 years and honestly I don't know if it ever worked. It certainly doesn't seem like it is now even after I upped the dosage. My biggest fear is that this has progressed to the point where it will not go way again. It's hard to live with that fact, especially when there has never been a reason found for it to happen in the first place. Sorry for ranting on. Just very frustrated as I am sure we all are.
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Atticus (06-10-2021)
Old 06-10-2021, 07:24 PM #2
Lara Lara is offline
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Hi Jim, you're not ranting. It's totally understandable that you're frustrated. You've been through a lot this year by the sound of it, having had the virus and all.

Hopefully your symptoms will settle. I can understand how you must feel not knowing if the actual virus or the vaccine or even combination of both has exacerbated your neuropathy.

There are people on these forums who had absolutely no problems when they had their vaccines except perhaps for a sore arm. There are others who describe much worse for themselves or their family members. It's a bit of a dice game to me. I haven't read of anyone else except you who actually had Coronavirus and then had 2 vaccines on top of that. That seems like a big hit to your body.

You should check out some of the information coming out about what they're calling Long Covid. I'd probably be hoping that it was exacerbated by the vaccines and your body has reacted a lot and that it will settle in the coming weeks.

take care there.
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Atticus (06-10-2021)
Old 06-10-2021, 07:33 PM #3
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Coronavirus and the Nervous System -NINDS

Coronavirus and the Nervous System | National Institute of Neurological Disorders and Stroke

In the section "What are possible long term neurological complications of Covid-19" - "Nerve damage, including peripheral neuropathy", this NINDS article describes neuropathy symptoms post covid in some people "weeks and months" after their infection.
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