Welcome MaryCarol. Someone will be along.

Thank you, Kitt

Welcome, MaryCarol!

Do you know when you got the Rocky Mountain spotted fever? It has to have been through a tick bite. If you've had it for quite a while, untreated, it seems to me that your symptoms might be connected with it, as your neurologist has indicated.

The usual treatment for RMSF is doxycycline. Is that the treatment you've been getting?

Good luck with the appointment on Wednesday. I hope you can find some helpful answers.

Hi Agate,

Thank you for responding to me. I don't know when I was bitten but my symptoms started July 12, 2021 and I didn't get tested for Rocky Mountain until the end of October. Did 2 weeks of Doxycycline. Went to an Infectious Disease Dr. who prescribed another 8 weeks of Doxi along with Rifampin followed by hydroxychloroquine that I continue to take. My Infectious Disease Dr. is checking my titers again in Sept. During Covid lockdown, I spent 4 - 5 hours a day working in a Community Garden and I'm thinking I got bit while there.

Thanks for the good wishes for Wednesday! I'll let you know what happens.

Mary

I went to the allergist/immunologist and am currently undergoing testing for mast cell activation syndrome. I should have results in the next 2 weeks.

The dr. said MCAS doesn't cause PN but is a separate condition. Here I was thinking maybe I had found the cause of my small fiber....