--to your nerve pain, why not try taking a B12 supplement, such as 1000-5000mcg (1-5mg) of methylcobalamin, several times a week or even every day?

Much more convenient, and likely much less expensive, than injections--and the dosing should provide, though 1-2% passive absorption, enough B12 to maintain stores, even if you have pernicious anemia or some other absorprtion issue.

Hi Johnny,
I'm sorry that you are struggling with pain at the moment.
I was wondering about your first posts where you mentioned Sjogren's diagnosis (Sicca I think you said).

I don't know too much about Sjogren's except that I know that people experience "flares" and that neuropathy can also be involved. So basically I am wondering if that diagnosis still stands and if you received any treatment for Sjogren's at all and if it helped your neuropathy at the time.

Hello Lara

I was told ages ago I don't have Sjogrens and had a negative biopsy. I have absolutely no idea anymore. I have now permanently switched off my mobile phone and basically given up on work, everything.

I had to treat myself in the end after finding out I was grossly b12 deficient. This cured my chronic fatigue syndrome. I also became gluten intolerant. The b12 also cleared up the nerve pain. Now it is all back and there is no support and no help and no sign of why it is back.

I was due to leave the UK for 3 months from today to be immersed in culture and the sun as I have been DESPERATE to do for 6 years. Now I am trapped here again in an attic room like a loser.

I am angry and disgusted I have to go through this again.

This SFN stuff seems to have a mind of its own.

Are you doing any better? I really hope you are seeing some improvement.

I know I am about two months into a major flare up out of the blue as well.

I know the toughest part in all of this is not really being able to get many definitive answers.