HI Dakota!
I find your story amazing! At least YOU know when it started. I wish I did. I think mine sorta sneeked up on me when I wasn't looking! I just know it's been slowly getting worse over the past year. Maybe your bad migraine did cause your neuropathy......who knows where Migraines come from! Hopefully one day they'll get it all figured out for us....we can hope anyway!

I really believe that for some of us, something happens to make the brain just freak out and start interpreting pain signals in a wacko manner. I think a contributing factor for me was going through a year and a half of terrible migraines with almost no medicinal relief until we finally hit on a drug that worked to prevent theml Just way too much pain. I think pain begets pain. It is a weird story, though, and I've learned not to tell doctors because they act like I am crazy.

oooh, i like this thread. It reaffirms my hope that someday I'll meet someone having a similar story to mine (you know, to better share notes with)!

So, the current diagnosis is ideopathic small fiber sensory neuropathy with the primary being PAIN!

It started when I was about twelve and was assessed as 'growing pains'. It was only in my legs and from the mid-calf down--but not to the toes, just to mid foot. It only happened in the evening (around bed time) and only a few times a month. I used to ask my stepfather to 'rub the pain out' as massage relieved symptoms while it was happening. I'd somehow manage to fall asleep with the pain and it would be gone in the morning. I also occasionally got burning feet/cold feet. All of these symptoms were/are always bilateral.

The pain is an inside pain that defies description but radiates outward seemingly feeling like from it comes from the bone. It's not acute like I paper cut but constant [like bad menstrual cramps in my legs, I guess] and every bit as discomforting and disruptive to concentration/life.

About 4 years ago the frequency increased and became at first every evening, and then it turned into every day, all day.

I currently have no abnormal finding in the EMG/NCV but my sensations are less in the foot area when it comes to the tuning fork thingy and the safety pin.

HI Hurty! Welcome!!
WoW sounds like you have had years of this crappy Neuropathy pain! Sorry to hear that! I've just had the worst of mine from this past Feb., but Lord knows I've got other pain in my life and have for the past 30+ yrs.
I hope you are on some pain meds that are helping with your pain. I don't know what I'd do with out good pain meds! Take care!

Hahahahahaha! Tom, that is a great story. I am so sorry you have PN, but you might get the prize for the strangest onset. And Hurty, 12 years old? Isn't it remarkable how none of the textbooks or articles mention this type of thing. Here we are with all of these interesting phenomena, and no one has any idea.

you are absolutly right. Here we have a nice collection of stories on PN and different stories on onset, but it seems that our doctors or neurologists didn't here about them. I think we can write a book ... something like "our story..." or so.
I would like more people telling there stories. It is so strange, all this.
And - if you are thinking of Tom's story, mine was almost the same, but it took several days/weeks and not in such a short time, till it reached where it reached. What makes me think that it can be a virus...
(I hope all of you understand my broken English....)

It was cool in the morning so I dressed warmly. I was running around doing errands as I was prepering for a houseguest. I remember I was excessivley hot. Hotter than I had ever been before,and I was sweating more than I ever had. I felt the most terrible painful stabbing in both eyes, I thought I would be blind by nightful. I had that terrible stabbing/electric pain for 3 days in my eyes. Then it went away,but the back of my head felt the same pain. It was the worse burning pain ever. Clearly not normal. By that time I knew something horrible had happened to me.

I felt it moving down my arms,torso,back,and finally into my legs. I checked myself into hospital,and after a few days in there and all my blood tests coming back normal,and my neuro exam was normal,they sent a psychiatrist in to speak to me. I denied being suicidal and being on drugs, so I passed the exam.

The head neuro of this hospital told my husband in his 50 years experience he has never heard of such a story,and can find nothing physically wrong with me.

My husband denies I have neuropathy up to this day.

... since we are swapping war stories..here goes mine, and like Dakota says ,I hope none of you will think I am disturbed. It is 10:30 pm I was lying in bed for a good nights sleep , when a strange warm flushing sensation started in my toes and progressed upward through my body to the top of my head. This happened within 30 seconds beginning to end. It left me practically breathless and disappeared in about 15 minutes. When it was gone I was left with 2 burning bands about my ankles for the rest of the night. The next morning I felt like the life had been literally sucked out of me. Wala! SFSN ,SO THE NEURO SAYS. This was April 2007. Boys and girls the whole incident seemed as if an alien was taking over my body. That's my story and I'm sticking to it...Tom

HI Dakota!
I have wondered if they years of Interstatial Cystitis pain and Barrett's Esophagus pain had anything to do with the Neuropathy pain I'm dealing with now?? I always trugged along with all the pain and kept going on in life with raising my son and working etc........but there's always been pain in my life. That pain always interupted my sleep and I'm sure some how it's defined who I am today......because pain makes you strong. My husband always tells me that he could never have gone thru all the pain I have......but I tell him sure he could have....we all do what we have to do.