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Old 08-18-2007, 02:14 PM #1
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Hi Dakota:

Did you know you can give this spinal cord stimulator thing a trial run??

Click on this. It expains everything.

http://www.spine-health.com/topics/s...inestim02.html
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Old 08-18-2007, 03:24 PM #2
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who know with any of this stuff-
one doc was ready to put one in for me next week
the other doc said dont do it-too many problems.
i am not on the pain meds you are-i wish i was-i wish i could tolerate them.
you can have a trial, then it is permanent. some people get relief.
i read on another forum that it works, and on another it doesnt.
i would talk to other people who have your same diagnosis and symtoms and have the scs and see what they say.
my doc said he would try to get in to cover both legs and feet but wasnt sure -what kind of an answer is that?
do these docs have them in their backs?
never the less, it must be working for some, or they wouldnt be prescribing them left and right.
best-
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Old 08-18-2007, 03:34 PM #3
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I do know that Jerry Lewis wore the Medtronic device. He had it implanted. He said "I have never felt such relief in all my life".

So he found SOMETHING that worked!!!!

Thank goodness for that!!
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Old 08-18-2007, 06:34 PM #4
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Melody, thanks so much for that website. I had looked at a couple of others, but the information on them wasn't that good. Steff, I wish you could tolerate some pain drugs, too. Sounds like you might be a candidate for the stimulator, too. I go back to my doctor next Friday. I guess I will at least talk to him about it.
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Old 08-18-2007, 07:15 PM #5
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Hi Dakota:

Years ago, when Alan and I were on a journey to find out why he had neuropathy, we went to back doctor after back doctor. No one would help us. They did try the epidural on him. Didn't do anything for his pain (because the problem is auto-immune) and not his back.

But one doctor tried to talk to us about the Medtronic device and gave us some brochures. Alan didn't want to do it.

Don't know who is using it now, but hey, if it helps with the pain, why the heck not.

I will never understand one thing. Alan has his pn between certain toes. Not any other part of his body. Oh, he gets the burning feet sometimes, but mostly it's the stabbing, burning, buzzing, between his toes.

I cannot understand why they can't give him trigger point injections between his toes. I did ask his podiatrist and we were told "no, it does not apply to him". Now why not?? I've never gotten a good answer.

Oh, we are going to a meeting in September. I'm starting a new thread. Looks very interesting.

Melody
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Old 08-18-2007, 09:09 PM #6
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I dodn't know anything about trigger point injections. Wish I did.
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Old 08-18-2007, 09:32 PM #7
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HI There's a book called Pain Erasure by Bonnie Prudden. It's all about Trigger Point therapy. My husband did Trigger point therapy for my back and it helped tremendously with my low back spasms and bladder spasms.
As far as the spinal cord stimulator......I say go for it! If it doesn't work take it out. But I'd give it a try.....at least the trial and see if it works at all.
I do know what you mean about relying on pain meds and not wanting to be without them. I have a sleep disorder and I panic if I'm low on my sleep meds. I've had the problem for 40 yrs and taken meds for it for 30 yrs....
Let us know what you decide to do.......we're with ya, with what ever you decide!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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