I never oringally posted with all my info, and since i have not had much feedback, i am going to post the long story. i know that no one is a doc, but docs have not helped me so far, and i do not seem to fit the "normal" PN pic.
Background:
20 years ago, I had multiple neruoma sugeries in my feet which gave minor relief, but caused fibromyalgia and pain. dx, pain syndrome or fibro, take your pick. i was told they were the same. I also have disc disease, overuse in my arms and hands and carpal tunnel. In spite of this, I lived in some pain for 20 years, raising a family and working, doing the best I could and being a member of life. I was not a person to give up. I traveled and enjoyed people.
16 months ago, I decided to try prolotherapy shots in my feet to see if I could reduce the pain. The injections caused great swelling and pain, and when the swelling went down, the pain stayed in my feet and move up my legs to my spine in such debilitating degree that I cannot stand for more than five minutes. It felt like the pain was moving up my nerves, not my muscles. I have a burning, stabbing, knifing pain that gets to level 8 or 9 pain if I try to walk. I feel as if someone is cutting the nerves in my legs and feet, pouring acid on the skin, and electrocuting me at the same time. I am no longer part of life and in a wheelchair most of the time. I can walk in and out of a place like an office, but by the time I get in I must sit down.
Doctors have prescribed everything from a spinal stim put in my back, or go a Fentanyl patch. I am pretty sure it is neuropathic pain with a central pain part to it. All from these prolotherapy shots! Now I need heavy meds to function, but I cannot tolerate them.
Yes, my feet were hurting before I had the shots, but I could walk from one end of the mall to the other and be in some pain, but not need a wheelchair! And now I have tortuous pain that often is unbearable.

in addition to the neuro who has not helped me yet (sheduled for EMG the 24th) and two pain docs in the next two weeks, i am being treated by a doc for neurovascular tone for the fibro. he thinks he can help my burning pain too, but he is very much into his program and i do not think he understand the severity of my nerve pain coming on after the prolotherapy shots.

so is my situation something that belongs here? i am not getting much response, i have read most all the sites suggested, but it is not the same as talking to people to have similiar symtoms. nothing quite fits, but maybe that is the way with PN.
Steph