to all of you, dear friends. I asked my neurologist strait in is face - if it might be CIDP in my case and he said - absolutly not - and I want to belive him. AS far as I understand and read, the onset in my case, which prolonged for several weeks, seems to me as some virus attact or something like this. My symptomes are sensory in nature - numbness is the main symptom for now. no pain. no muscles weakness, I have balance and can go on my heels.
I think in my case - the neurologist is very confused: First he thoght of CMT since I have high arches and hammer toes but the nerve conduction test was normal. Then he started to check for SFSN - but the QST was normal.
All the blood tests that I did were within the normal range - so his conclution for now is that I have no nerve demage, but some problem with the comunication amonge the neurves themselves. He dosen't think that I have to do the spinal tap now, but only the skin biopsy, if I want.
I think I have to meet him again to reevaluate my case.
Meanwhile - I do Yoga and Tai CHI and Chi Kong and Pilatis and meditation which help me a lot. It is very hot here so I go to swim from time to time, but not enough.
I know that there is nothing to do and what I have is there. I dream ofcource about recovery,,,,. Sometime I think to myself - what does it matter what the name is and if there is a name to my symptoms - In any case there is almost nothing to do, just to relax and try to continue with the ruthine life as much as possible.
You are dear friends. I'm happy I found this place...