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Old 09-10-2007, 08:57 PM #1
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Default One question

Why is everything for diabetic neuropathy???!!! There are plenty of us out here with serious neuropathy that aren't diabetic and..no hope of ever recovering. It just doesn't make sense to me sometimes.

Billye
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Old 09-10-2007, 09:03 PM #2
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Default I'll take a stab

at best and say that diabetes is still a more recognized disease state as well as the complications associated w/ it. Unfortunately for many of us w/ idiopathic and other numerous types of neuropathies the numbers of patients aren't as evident and we are a "silent" majority of sorts - just my guess. I don't have an answer much less a good one.

Alkymst
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Old 09-10-2007, 09:07 PM #3
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Default Neuropathy 'advocates' don't exist

in the regular sense...the NA seems to be in it's own world. I will note that there was NOT one professsional represatative of that association at last years' NORD conference...a conspicous absence IMHO.
The Diabetics and those on CHEMO for cancers HURT, there are just a whole lot MORE of them, ergo they have a louder voice. They are also very lucrative pharmaceutical markets for the future, and on, etc.....

What I NEVER EVER GOT was why is Diabetic PN 'PAINFUL' and other PN's NOT? No offense to any diabetics here...I believe we all HURT to our varying undefined degrees equally and democratically. Just the insertion of PAINFUL in only one instance, well, it IRKS me? After all, we ALL HURT HERE, I believe. Hugs to all! - j
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Old 09-10-2007, 10:12 PM #4
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Default

I think it is because the cause of their PN is known(diabetes), so during a study knowing the cause eliminates an important variable and makes it more scientifically valid.
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Old 09-10-2007, 10:45 PM #5
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No one in the medical or research fields likes patients with problems with unknown causes. It makes them feel inadequate, so they avoid us.... Ha ha. May be a grain of truth in it, though.
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