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09-12-2007, 06:33 PM
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HI Megan, I'm SO sorry for all you are going through. I had the whole series of tests...and Nerve conduction test and all came back ok......it wasn't till I had the Nerve/muscle biopsy that it showed Chronic Axonal Neuropathy! My dr. said that most of the time it takes the biopsy to show what the problem is!
Maybe you should try another dr. Talk to your GP about it and hopefully he'll help you find someone who's willing to go farther than the conduction test. I just feel so bad for you having to go through all this testing! Hang in there, you aren't crazy!
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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