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#1 | ||
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Senior Member
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Hi, if you didn't have feet problems, numbness etc before the surgery then i would definatley go back to the neurosurgeon, maybe a current MRI may help find the problem.
I had the same affect to Neurotin as you, like a walking zombie, but found Trammadol slow release very helpfull without giving me that zombie feeling. good luck Brian ![]() |
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#2 | |||
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Member
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HI Lovely Iris!
As Billye said, there's LOTS of great people here with LOTS of great info. I hope we all can help you in some way. I'm So sorry you are having to go through all this. I think most of us thought after a surgery or test we'd be doing much better......then something else pops up! Hopefully your Neuro. will get things figured out for you before it gets worse. Good luck!!
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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#3 | |||
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Senior Member
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Brian mentioned that if you did not have foot problems prior to the surgery than you need to definitely go back to the neuro and tell him of this symptoms along with the others. The foot dragging sounds like something called "foot-drop". I have this on my left side. It's from the nerves not working correctly. If your neuro has no answer or is reluctant to pursue this, perhaps you could get a referal to a neuro who specializes in Perpheral Neuropathy. It sounds as if you may have some issues with this.
Billye |
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#4 | ||
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Magnate
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--that, given your history, the first thing to look at is your lower spine area. there may be impingment of nerves from scar tissue and the like, and the fact that your symptoms do change significantly with position does seem to point to something biomechanical. It may be a problem with the spinal cord itself, or with the nerve roots in the cauda equina area.
The other thing to check, just to make sure, is the rest of the spine--problems in the cervical area, especially, can cause problems with the lower body as well as the upper (though it seems too many neurologists forget this). Have you take a look at our spinal disorders forum? http://neurotalk.psychcentral.com/forumdisplay.php?f=22 There's a lot of detailed expertise there about post-op symptoms/complications and such. |
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#5 | |||
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Member
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Hi Iris,
I have pn, AND I have a lousy spine, and have had two spine surgeries, with an L3/4/5 fusion. I just had a talk with my neurologist, about some new neuro symptoms. (I have seen so many specialists in the past few weeks, that I wish I were a passport, so I could proud of each stamp I add!). This was his take: LJ, he says, you could have Sjogren's, but there's really nothing to be gained from finding out. It's just a lousy name. You don't have MS. You do have neuropathy, and you know you have a good B12, and aren't celiac. So, he says, we need to stay on top of your spine. If your neuropathy gets a bit worse, or a bit better, so be it. But if you've got some arthritis or disks pressing on nerves and damaging them near the cord, that's bad. So, he says, we need to keep LOOKING at your spine. We have to do regular MRIs, CTs, and, he says, I just have to figure out what I want to look at most just now. I need to think. He says. So, my take on it, you could have neuropathy AND a bad spine, but in terms of the neuropathy---get the B12, get the celiac tests---they're easy---but make sure your spine doc keeps checking out your spine. I'm beginning to really really like my doctors. I'm feeling bad, but they're not doing anything. I think that's good. I'll make a post on it.
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LizaJane . --- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009 ---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst |
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