Hi Iris,

I have pn, AND I have a lousy spine, and have had two spine surgeries, with an L3/4/5 fusion.

I just had a talk with my neurologist, about some new neuro symptoms. (I have seen so many specialists in the past few weeks, that I wish I were a passport, so I could proud of each stamp I add!).

This was his take: LJ, he says, you could have Sjogren's, but there's really nothing to be gained from finding out. It's just a lousy name. You don't have MS. You do have neuropathy, and you know you have a good B12, and aren't celiac.

So, he says, we need to stay on top of your spine. If your neuropathy gets a bit worse, or a bit better, so be it. But if you've got some arthritis or disks pressing on nerves and damaging them near the cord, that's bad. So, he says, we need to keep LOOKING at your spine. We have to do regular MRIs, CTs, and, he says, I just have to figure out what I want to look at most just now. I need to think. He says.

So, my take on it, you could have neuropathy AND a bad spine, but in terms of the neuropathy---get the B12, get the celiac tests---they're easy---but make sure your spine doc keeps checking out your spine.

I'm beginning to really really like my doctors. I'm feeling bad, but they're not doing anything. I think that's good. I'll make a post on it.