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#1 | |||
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Member
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HI JimJ! I'm from Nebraska too.....I'm from Lincoln but live in Houston, TX now.
I have Chronic Axonal Neuropathy but didn't get it diagnosed till I had a Nerve/Muscle biopsy. I had ALL the other tests that came back just fine. I hope your wife gets a diagnosis and gets on proper meds. My Neuropathy is in my arms, legs and scalp....of all things! PN is such a rotten thing to have to deal with! You came to the right place though for info and suggestions. Everyone on this site is SO compassionate and caring. Good luck to you and your wife!
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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#2 | ||
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Magnate
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At first my test showed very little and I was in bed like 23 hours a day and crying through vicadin. I did go for many opinions and was upfront with my docs about it. I drove too and have seen people in MI where I'm from OH,CA,and I think now will be in FL. When I had some tests repeated they did show some issues and also I had an ssep which I was told is used when the emg doesn't show as much as the pain one is in. I'm new here too somewhat so I'm no expert. What I do know and its very hard not to give up and without my mom I would of cause so many docs are YUCK! There are some good though I think. THis forum though is GREAT! Hang in there.
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