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Old 10-07-2007, 07:47 AM #1
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Roxie2007 Roxie2007 is offline
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Location: Houston, TX. Orig.from Lincoln, NE.
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Roxie2007 Roxie2007 is offline
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Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
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HI JimJ! I'm from Nebraska too.....I'm from Lincoln but live in Houston, TX now.
I have Chronic Axonal Neuropathy but didn't get it diagnosed till I had a Nerve/Muscle biopsy. I had ALL the other tests that came back just fine. I hope your wife gets a diagnosis and gets on proper meds. My Neuropathy is in my arms, legs and scalp....of all things! PN is such a rotten thing to have to deal with!
You came to the right place though for info and suggestions. Everyone on this site is SO compassionate and caring.
Good luck to you and your wife!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 10-07-2007, 10:05 AM #2
daniella daniella is offline
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At first my test showed very little and I was in bed like 23 hours a day and crying through vicadin. I did go for many opinions and was upfront with my docs about it. I drove too and have seen people in MI where I'm from OH,CA,and I think now will be in FL. When I had some tests repeated they did show some issues and also I had an ssep which I was told is used when the emg doesn't show as much as the pain one is in. I'm new here too somewhat so I'm no expert. What I do know and its very hard not to give up and without my mom I would of cause so many docs are YUCK! There are some good though I think. THis forum though is GREAT! Hang in there.
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