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Old 09-22-2007, 09:04 PM #21
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Glenn:

Isn't it amazing, I understood absolutely everything you wrote. That would not have been the case, let's say, a few months ago. I must be paying attention. I could print this out for Alan, but he would not understand it at all. He is not good with medicaleeese, if you get my drift.

I gather, that if this guy says "bring him in, with all the x-rays" and he looks at the x-rays, and if knows his stuff, he'll either tell Alan, "well there's 50/50 chance I can help you", or he'll say "wow, we've got a good chance here". or he'll say "sorry Alan, you don't have a big MORTON NEUROMA NERVE THING GOING ON, so you are not a candidate for this procedure.

Alan just told me "there has to be something, I mean cmon, this is 2007, there has to be something they can zap to get rid of the pain between my toes. I told him "this morning when you came home from work and went to sleep, we did the cotton ball thing between your toes, and you slept for 8 hours straight, right"?? He admitted I'm right.

So if he forgets to put the cotton balls on when he's awake, now whose fault is that??

Now on to another topic. ME, and my diabetes report from Cornell!!!
I've been doing really great with the Methyl B-12. Yesterday I went to Cornell, lost 4 more pounds, they lowered my Lantus to 26 down from 30. When I began Cornell 32 months ago, I was on 46 of the Lantus and 4 oral pills a day. The oral meds went first, then the dosing went down little by little of the Lantus. They also decreased my blood pressure meds because my pressure was 99 over 55. I said "whoa", and they said 'yup, we are lowering it, you are doing really good, although it's too good for our protocol. You see, they put me in the standardized group for the diabetics, and the intensive group for the high blood pressure people.

My body however reacted like an intensive was supposed to (in the diabetic protocol). They say "my god, why can't we put her in the intensive group?" and the other person said "you know we can't, she's in the standardized group. Now I have no idea why it makes such a difference that I went down in weight, went down 20 units of the Lantus, went off all oral meds, and they lowered my blood pressure meds. Isn't that a good thing??I asked them this. and they responded "oh yeah, it's great for you, but not so great for our protocol."

So next month I'm to be interviewed by an investigator of the ACCORD program. I asked the doctor "are they going to be mad at me or yell at me for breaking their protocol?" She laughed and said: "well, he's not going to be happy, he'll probably say "you broke our protocol, you were only supposed to get your A1c down to "such and such a number", and you exceeded what we expected"

I then asked the doctor "can they eject me from the ACCORD program, and she assured me "no, they can't do that".

So for some reason, unknown to me and known only to the man above, my numbers are better than they are supposed to be and I guess the investigator wants to find out why.

Oh, I told the doctor about my success with the Methyl B-12. She smiled and said "you are controlling your blood sugar, that is the most important reason why your PN is not flaring up".

So once again, poor old Methyl B is not getting any pats on the back.

And I have an interesting take on my PN. As I said, I have had no tingling, no buzzing and very very little burning since I've been on the Methyl B-12. Maybe once in a blue moon, if I cross my legs at the ankle, I may get a burn but that's about it.

Well, tonight my son called. No fight or anything. A two minute conversation. That's all it took for my body to react to hearing his voice. My feet started to burn. I can't begin to describe what happened to my body.
I couldn't believe it. I told Alan, "my feet are on fire" and he said "that's because you spoke to Frank".

When I calmed down and put the whole thing into perspective (about 1 hour), I composed myself and my feet are better. I guess you could call this a stress flare. What a shame. I can't even speak to my own son without my body reacting to him in this way. This is not the first time this has happened. I usually have spasms when I hang up the phone. This time it was the PN.

I am trying not to have my body react to him this way but heck, it's doing it all by itself. I'm usually very good at distancing myself from my son but tonight, well all it took was a two minute phone call.

One can only imagine if he lived at home!!!!!

mel
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Old 09-26-2007, 04:18 PM #22
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Default Dr. Boswell's reply today to my request for ingredients.

Dr. Boswell's exact reply is
Quote:
David:

There are five active ingredients in Restore-n or s that work together to solve the problems of neuropathy, pain, tingling etc. While I can’t give you the active ingredients I am attaching some information that may be helpful.

Blessings
Dr Boswell
In one of the attachments (they were sales pitches), he included these strong recommendations:

Quote:
1.Walk at least 30 minutes daily; 45 minutes is even better. Use a treadmill or walk the neighborhood. You do not have to walk fast or power walk. Just start walking.
2.Keep your diabetes under good control. Take your medications on time. Test your blood sugar regularly.
3.Quit eating those things that raise your blood sugar out of control. Eliminate sugar altogether. Substitute Sweet ‘N Low or Splenda for sugar. Splenda tastes just like sugar and has no calories.
4.Lose the extra weight. Every pound you lose improves the quality of your life, especially as you get older. It will also extend your life.
5.Take 250 mg of time release Niacin twice daily. This helps your blood circulation.
6.Take 400-800 units of Vitamin E twice daily. This improves the walls of your blood vessels.
7.Take a good high strength multiple vitamin daily.
8.Take 50 mg of Co-Q10 daily to protect your heart and veins. Your heart is at great risk, so protect it.
9.Take an 81 mg aspirin daily with a meal. This helps prevent blood clots that can lead to strokes.
10.Take 2 grams of apple or grapefruit pectin twice daily. This will reduce your cholesterol better than any drug.
11.Take 10-20mg of Policosanol ea day to significantly reduce cholesterol.
This is generally good advice, and should help most people's PN. Especially critical are #'s 1-4 . If you try these four things with Restore-n or without Restore-n, your pain will probably reduce and your nerves start healing. If you take Restore-n and don't do all of the eleven items, he would probably be covered legally.

My advice is take nothing where you don't know the ingredients, dosage, etc., to not uncritically take the word of anybody who stands to make a buck from you even if they claim to be religious, and to not buy Restore-n.

Blessings
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Old 09-26-2007, 04:22 PM #23
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he CAN'T give you the active ingredients? and people are supposed to take a pill that they have no clue what is in it? how does he sell this product legally?
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Old 09-26-2007, 04:39 PM #24
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I agree!

sorry I would not go near any product where the ingredients are not disclosed.

Also, ummmm sorry but splenda It makes my son's neuro issues much worse if he has sucralose aka splenda so I am not sure why this is being recommended.
Sucralose is chemically altered sugar (chlorine substituted for the carbon in a few places is my understanding) Better to use stevia IMHO, or just a little pure turbinado sugar. Sorry to offend any splenda fans but it and nutrasweet/aspartame are not good for people with neurological issues....IMHO of course

but yes, back on topic...not disclosing ingredients is a problem as it could contain stuff that interacts with meds, or causes allergic reaction etc, never mind that could be downright dangerous if not properly used
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Old 09-26-2007, 04:42 PM #25
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Mad Pretty HINKY....

My hinky-meter is going off the scale! LOL

You know, conditions that are hard to diagnose, and have little effective treatment, which frustrate the patients and their families... are ripe for products like this.

Long ago and far away in another cyberworld....I evaluated several similar products for ADHD.

Attend, Focus factor...etc. All prey upon people who will part with money just in case this works. In the case of Focus factor...this company even secretly attached peoples' bank accounts without their permission..and ended up on an internet site that revealed scammers.

I KNOW that there is no topical agent that will dissolve gout crystals. So this cream sent my "hinky meter" off the scale.

I really take exception to Dr. Boswell's signature. Blessings indeed!
As if this were to reinforce his benevolent divine mission?
He is clever...the price he is charging is not that high,and he probably lures many successfully.

Thanks David for emailing him... you have shown him and his group for what they really are.
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Old 09-26-2007, 04:48 PM #26
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Default Sustances that are not regarded as "drugs"--

--but are regarded as supplements or "nutriceuticals" (the current term in vogue) are not regulated nearly as closely in the US as they are in many other countries.

Most vitamin/mineral preparations can still be sold "over the counter" and with much less required vetting of active ingredients than one has with prescription items. (I'm sure this individual, and probably others, would say that the special formula costitutes a trade secret.)

Thre are both good an bad aspects to this. On the one hand, we in the US have easier access to a much greater of potential helpful substnaces than people in many more regulated countries. On the other, yes, there's a good deal of "caveat emptor"--there's a lot greater chance of producers and distributors getting away with putting in useless or potentially harmful substances and not having to reveal them.

There've been a number of scandals involving supplements (especially "herbal") in the US--remember the ephedra controversies?--so one has to be very careful in this realm. Vitamins/minerals/herbs and such are still substances with chemical effects, just as drugs are, an due diligence is just as important.
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Old 06-02-2008, 10:09 PM #27
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Default Restore-n

I bought a bottle of restore-n. Its smell horrible some of the ingrients are listed. Today i was able to walk faster and bend mt foot over, if i had to grade now I will give it a 7.
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Old 06-03-2008, 10:19 AM #28
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Question since you have the product,

It would be nice if you could list the ingredients for us here.

Since we could not get this info from an email or the net.

What exactly is in there? Menthol? Emu oil? what?
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Old 06-03-2008, 11:28 AM #29
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Quote:
Originally Posted by starglacier View Post
I bought a bottle of restore-n. Its smell horrible some of the ingrients are listed. Today i was able to walk faster and bend mt foot over, if i had to grade now I will give it a 7.
Excuse me for being doubtful (as is Mrs D), but being a new member to this forum, with only 2 posts in your file - I wonder where you came from to recommend this product as your 2nd, ever - post.
Please help me become less dubious and help us out here, by responding to Mrs D's request for label information.
I hope that I am just a bit paranoid, and that you will become a useful and helpful asset to this BB.
I look forward to you joining us, on a regular basis.
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Old 06-03-2008, 11:40 AM #30
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Talking

Quote:
Originally Posted by nide44 View Post
Excuse me for being doubtful (as is Mrs D), but being a new member to this forum, with only 2 posts in your file - I wonder where you came from to recommend this product as your 2nd, ever - post.
Please help me become less dubious and help us out here, by responding to Mrs D's request for label information.
I hope that I am just a bit paranoid, and that you will become a useful and helpful asset to this BB.
I look forward to you joining us, on a regular basis.
LOL...yep...today my "doubtful" mood thingy is very appropriate! LOL
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