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#1 | |||
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Wisest Elder Ever
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thanks for making it J.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#2 | |||
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Member
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Dahlek,
you've done many people a great service. alkymst |
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#3 | |||
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Senior Member
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I've sometimes wished we had a separate "sticky" that could be addressed to newcomers only who don't know where to start with their search. All the info in the old "sticky" thread has become mind boggling and requires time to sort thru. And when you come here you are in so much pain and so desperate that the last thing you think you have is time. Time is actually what you will have the most of as this disease doesn't seem to just happen overnight and leave overnight. So I'm really glad to see this post. Maybe one of the moderators will take my hint and arrange this for us.
Thanks dahlek, good job. Billye |
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#4 | ||
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Magnate
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Is to get this to the 'top'?
One other aspect I'd not addressed before is that 'history' issue- what you tell US...A short not too detailed 'history' of what has happened, where you are numb and how fast or slowly it's spread, as well as what all docs have said your 'issues' are-and the tests if any, that have been done...GET THOSE TEST RESULTS FOLKS! All of the wiser folks here can't give YOU info if you don't give them info??? Starting with the bare bones outline helps...you can say what tests you've had, basic results, and medications you are on. For your own privacy's sake, never state docs, specific result numbers nor more than the basic of basic medications and ranges you are on. By way of example, check out all my posts [many, but not near as much as others]...does anyone know what dose of what anti-seizure med I am on? or what supplemental pain meds I am on? It'd take a LOT of reading here and other places to ferret that out. YOU CAN ASK FOR HELP, by giving out some specifics and not giving the whole of you away! Whatever you offer folks here to work with, they will WORK it! So please do not be shy about starting a 'new thread' about YOU and we can all address your issues as best we can. As for starting a new thread about 'you'?, It takes lots of courage to start to talk to a bunch of literal strangers about something very personally affecting YOU! I started out a stranger a couple plus years ago and I am not now, folks here were kind in asking questions and will probably ask you questions you are WISHING YOUR DOCS WOULD ASK, or maybe you don't know enuf to KNOW that your docs should ask the questions. Yes, you are scared, unknown stuff is going on,....what is reality? Well, here we are experienceing that reality...daily. We aren't shy about it.. But, we do NOT brush things off as 'strange'. I don't think one of us here has not had at least THREE strange things with PN... [I've had some real doozies] I hope this helps you all into the world of PN, Let's all hope this is a really good roller coaster ride? Knowing how to deal with it can even make it fun! Well, one can always hope? - j |
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#5 | ||
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Senior Member
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Yes, well done Dahlek very thoughtfull of you
![]() Last edited by Brian; 09-23-2007 at 09:16 PM. |
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