Last night, I noticed that my hearing is off. I have no idea if this is related or not, but it sure seems funny that everything that started Monday, has affected different areas of my head.

Cathie

I'm so sorry for all your going through. Sending many thoughts and hugs first. Could the hearing be from the pneumonia? Maybe you should call the doc on the phone and adress these new concerns. I know it can be hard to get a call back but better safe then sorry. I'm sorry I don't have much to add but your in my thoughts and I care so much for you.

Cathie,
With Sjogren's, the mucus is thicker and doesn't drain well in the sinus/nasal area. And if you have pneumonia you probably have some mucus in the sinus/nasal area too. Use your sinus wash and see if this problem improves. And coughing could have detached the vitrious. At our age, it was probably ready to go anyway and you just hurried it up with the coughing.

You could do this while you are waiting on the call from the doctor.

Billye

Thanks all. Head is a little better this morning. I can almost hear again normally. Still feel pretty rough.

Doc said yesterday he wants me to go back to the school and get someone to do a bronchoscopy. I think he was taken aback at all of the antibiotics I have been on in the last few months.

Cathie

http://www.askapatient.com/viewratin...&name=LEVAQUIN

Back to square 1. Yesterday, the Internist put me on 30mg of Prednisone. Ears are blocked, eustacian tubes not functioning correctly, lungs are a mess and of course, the eyes have not changed.

I still think the one common denominator in the whole mix is the trigeminal nerve and the possibility it has been affected or damaged. Had I even read part of the above site, I would never have taken this drug, whether it is responsible or not. While this nerve has no effect on lungs, as far as I know, it does have neural control over parts of everything else that is going on here. Sinuses, ears, vision, etc...

Granted, not many people are complaining there about vision issues, but if you look, there are some with: floaters, trouble focusing, flashing lights, various neuro issues and then some.

Cathie

about that site.

People post all sorts of stuff...not all of it may be true.

Levaquin is not an innocuous drug but compared to dying of some infection,
it might be necessary for some. The trick is for the doctor to do what you need, not what some salesman encourages. And for a PN patient, Levaquin may be a poor choice. But then there are not many options left, besides IV if that happens.

I read that site when I started on Zetia this summer. And not ONE thing mentioned on it happened to me. There are horror stories galore there.

I think in your case, Cathie, you should be evaluated for other causes of pneumonia/pneumonitis.

I know this is on a different note but still may help about all your docs comunicating. Have you made any progress? I was thinking if maybe a few minds worked together and also about possible interactions between everything that is going on. Sending still many thoughts and a million hugs.