[LisaM]

I normally post on the TOS and RSD forums, but my SO's father was diagnosed with PN just before the "crash of OBT" and just when I promised I'd research for him. I've been weeding thru some of the posts here, and gathered SOME info for him (basically on magnesium, because strangely enough my own pain doc just had me start taking it, though I didn't realize there was a difference and I should be taking the citrate and not the sulfate, so I need to check my bottle!). But what I'd really like is a quick rundown from some of you, if I could. What I've been able to read so far hasn't been an account from a REAL LIVE PERSON, but more from a medical standpoint, and in medical-ese. I don't wnat that. I want to know from people who HAVE IT, or who knows someone who has it, what this is like...how it feels...how it progresses, what he can do to feel better, what meds you take, etc.

I'm not completely confident his dr. knows what he's doing. I dont' think he's seeing a neuro, but rather and MD. I'm not sure. Every time you ask him how he's doing, he says he's doing good (big fat liar that he is!). He's a FABULOUS man, we all love him dearly, but we can tell he's getting worse. His feet are getting more and more numb, and it appears his numbness has spread up to his knees and I can tell it's in his fingers now. I have TOS and RSD, so I do know how he feels in the upper body, but he's full of energy, and now he's slowing down and doesn't want to admit it. It seems to be spreading fast, and from what he is telling me, it doesn't seem like he's getting much in the way of medication. So what do you all take? What makes you feel better and all that jazz? And what can his sons and daughters (all grown, and all love him for the great man that he is) expect? How long until this takes over his entire body, or will it?

All input is appreciated. I'm leaving work now for the day so will check back tomorrow. For now, I'm forwarding him the info on magnesium, cuz I do think it will help him.

Hugs
LisaM