Hi Melody,

Thanks. Sorry for the double post. I Know it that many people on these forums know more about neuropathy than their doctors. I will respond in the other thread.

good morning. i merged the two threads.

welcome janonius.

Woops, glenntaj I meant to respond to you in post #6. Thanks for your help.

Jason,
You've come to the right place for frank discussions of SFPN, prediabetes, polyneuropathies, etc. There is a wealth of info on this site and as people have noted much of it is not generally known and or recognized. I looked up your doc @ UPenn, I'm not familair w/ him but I also go to UPenn and my experience has been much different and more positive. If you seek a second opinion I'd push hard for Dr. Mark Brown, the dept chair - his specialties are diabetic and prediabetic SFPN.
If you want pm me and we can discuss in more detail offline. I'm sorry for your plight PN sucks at best but it's nice to have someone in the same general area to talk with.
Best of luck to you.
Alkymst

I think that the only thing to do when a doctor treats you like that is to ditch him and try another. It is very stressful (for me) to try a new doctor out, but that is really the best option. I never go back to a doctor that I am not satisfied with.

To say I am not satisfied is an understatement. I AM FURIOUS. He basically said that I am lying about my symptoms.

If you are relatively young.... doctors do this. They tend to do it for everyone,
but basically they form opinions about you within 10 secs. How you sit, how you present, your face eyes (may show puffiness etc), whether you fidget, all sorts of things.

Right now my son is going gluten free (he has tried it on and off) because he
feels strange, cold and numb when he eats gluten. He went to a GP in Sept and had testing, basic stuff, and all was normal. He was told to keep a food diary with symptoms's occurance for 2 months, and to return. It is difficult to be young and active socially and stay gluten free, so he has slips now and then.
The longer he follows the diet, the more obvious the symptoms when he slips.

I suggest you go to the Gluten forum here and read Megan's question, and also read the responses. She is beginning as well to investigate this.

If your GTT was only elevated one or 2 pts and you weigh alot, are very tall, etc or overweight, that is sometimes considered normal. If you were taking Risperdal when you had the test or just stopped it recently, your blood sugar can be off from that. Risperdal and other drugs of its type cause diabetes in some patients.

There may be ways for you to improve, that do not require a doctor at all.
But you have to tell us here some details about yourself in order for us to
suggest nutritional supports.

Hi. First welcome and sorry for your struggles. I can relate to this. The doc I saw last week here was similar. I have learned and I know its so stressful to start over but in the long run will make things better. I wasted time by giving chances when I knew in my heart they sucked. You need someone to listen and when results of blood or other tests are confusing to look outside th box for just maybes even. Your not making this up and I hear how your frustrated. I often wonder if docs turn it on us when they are frustrated and were not an easy fix. Hang in there.

Don't blame you a bit. I am furious for you!

and have faith that we ALL have been through the FOOD PROCESSOR called 'diagnosis'.
Two things I cannot underscore here are that: 1- NEVER EVER SAY: I learned on the Internet! Say that about 17 thousand times...rather said...I read at the NINDS website about X & Y tests being the norm...etc. Or from Hopkins or Cleveland Clinic or MAYO! That will make your docs know/KNOW you are reading from credible sources about SPECIFICS! and 2- SECOND OPINIONS! They are worth their weight in GOLD...I totally dumpted neuro #1 for #2- attitude and communication are essential for dealing with this STUFF and #1 did NOT have any tact AT ALL...nor empathy, nor [after I found the folks here] any real knowledge of this portion of the neuro world. I got a 2nd - 2nd opinion of #2 neuros' diagnosis which took things a step faster/agressively in the diagnostic quarters and I am grateful -ever so much for that! I've also seen 4 other neuros in relation to my issues and things are pretty much confirmed about ME. IF your insurance allows it, DO it...A second [or more] opinion office visit is CHEAP compared to the damage that could happen from improper/prompt diagnosis/treatments.

Read the 'Stickies' at the top of the page, click onto the links to other sites/papers/opinions etc. [in blue] and read lots of prior posts here. That way you will get a pretty solid handle that we are not a bunch of 'poor-me' back patters. Each of us has been thru that purgatory called Neuropathy to many different degrees and pain levels... I for one, not only 'feel' for you, but with you! And-that you got such a turkey of a first neuro, well, it really steams me! THAT is a doc that better get into THIS century and quickly! Nuff said? - and now get to work on getting a good doc and getting what YOU NEED! - j