are slow here, but more help will surely be showing up for you.

Silverlady has lots of experience with rheumatic causes of neuropathy, and it's worth listening to her.

People will be coming along with B12 and gluten advice, so I'll just offer this on the overall picture:

You neurologist is wrong--you don't have to get worse before you get better. I've gotten better, and it's REAL better, not numbed out better, and so have others here.

In terms of medications---what you take and how much is a personal decision. Ive found that most of the medications I've taken for pain have not been worth the side effects--real drowsiness. That being said, I'v gotten great help from Elavil in the ridiculously LOW dose of 20mg at night. It helps my sleep, which makes everything better. I'd put money on your neuro having put you on a much heavier dose. Also, I find Klonopin helps take the edge off, used at night. During the day, I've not been badly enough off to choose the medications.

The most important thing with neuropathy is to keep moving. Most of us have sensory neuropathy, and it's common to stop using parts of us we don't feel so well. The greatest side effect of neuropathy is due to sedentary living--obesity, diabetes, heart disease. So if you can keep yourself active, you'll be better off.

That being said, the stickies have lots of information on diagnosis and treatment, do read them.

I've posted a site, www.lizajane.org with a list of laboratory tests for the causes of neuropathy. It's important to push doctors to do the tests and make sure they don't miss something treatable.

Rheumatoid arthritis does not, by itself, cause pn. There must be another cause; please be your own advocate and push the doctor to find out what it is. The charts are pretty thorough. Get copies of all results of all tests, so you can share them here. This site has some very smart people who will be intersted in the results, not just that your were told something was "normal".

Begin to keep your own chart--it will pay off in the long run.

Good luck.

If I were you, I would look for another doctor. I know that is discouraging, after having gone to two neurologists already, but what you doctor(s) has said to you is very bad acvice and trivializes your pain. First of all, having your feet go completely numb is not a happy cure -- when a person's feet go completely numb it is very difficult for them to walk, and this isusually limited to short distances with a walker. And most people with small fiber sensory neuropathy suffer for years or a lifetime without the pain ever going away. Liza Jane is certainly right that there are those of us who get relief with treatment, either actual improvement to the neuropathy, or (more commonly) with the pain. For example, I use a medication called a Fentanyl patch. Fentanyl is a synthetic morphine that is given in a constant dose by keeping a patch on, but it is a very low dose -- it is not like taking a big huge pill of narcotics. This is commonly prescribed for chronic pain problems. But some doctors won't prescribe it because they are ignorant. Ignorant doctors and many patients fear addiction, but studies have shown that taking medicne for pain rarely results in addiction. Addicts are people who take narcotics to get a high, not to treat pain. Narcotics taken in therapeutic doses for pain do not make people high.

People with neuropathy have varying levels of pain from mild to intolerable. I do disagree with people who say that PN can not kill you. My pain is so bad, that when I did not have medication I thought about suicide every day. The medication has not stopped my pain -- I am still unable to tolerate exercise for my health -- but I am able to do many things that make me happy and enjoy life. For some people, measures other that medication can do this, as mentioned above, but for other of us, we need pain medication. Mine have never caused side effects that are worse than my PN pain.

I was never able to get treatment for my pain from the two neurologists I went to. My family doctor rescued me from certain suicide by prescribing the Lyrica patches. Some people find help from a pain center or a pain specialist. But don't let anyone trivialize your pain. It is so degrading. You have enough to put up with.

Susan - you said: "My family doctor rescued me from certain suicide by prescribing the Lyrica patches." What did you mean to say?

Geez, sorry. I meant to say Fentanyl patches. Age has cought up with me and I sometimes mix up my words. Thanks for straightening this out. I do take Lyrica also, but of course that is a pill, not a patch.

........has to be a frustrating disease for patient and doctor alike. But it absolutely galls me to hear of a doctor telling someone to "hang in there till it gets numb." What a crock!

Hi and welcome. I'm sorry for your pain and what I call niken poop docs. I have had the same issues with docs. My pain is inner ankle/foot/calf too. For me I have pn but they say it should be treated like rsd and that being on it is very important even through the pain. Right now since I have tried cymbalta,elavil,neurontin,lyrica,tramadol and a few others which don't work I was reffered to a spinal cord stimulator. I was wonder if you have had any blocks too which I had in the start but didn't work. Also have you had an mri? I agree and its frustrating but I think you need to find another doc. I also notice my neuro's were less about pain control and more about just dong there tests. So that is where finding a pain doc is important. Please hang in there.

as nerves heal, pain may even get worse. I have found that pain also changes it's characteristics. One day the pins and needles are tolerable,and in 2 months camps and deep aching may have taken it's place. It's better to grab hold of the pain issue and deal with it as soon as you can,pain can be very demoralising.

Since neither of your 2 neuros have neuropathy,and people on this forum do have it, I hope you feel some confidence when people tell you it was not an appropriate resolution to advise you to wait until you get numb. Numbness is not an option.

On top of the forum is message posted "useful stickies", scroll through those if you can and read about nutrition and supplements to help you heal.

You can be very deeply numb and still have considerable pain. I do.

Pain has to be evaluated on a person by person basis. Is the pain just effecting certain parts of your life or is is it worse in the evening verses the morning, or is it affecting your overall quality of life. For me it was effecting my sleep it was effecting my emotional being it was affecting everything! I to have been on Elavil as a matter of a fact for 10 plus years. When you go up to 150 mg like I was the side effects were ridiculous! It is the stigma of pain meds that drs shy away from. I have tried a whole lot of pain meds and the opiates by far for a great majority of people help the most. Even that being said finding the right dose for each individual comes next. I have tried percocept,vicodin,loritabs and it wasn't until we tried the oxecodone ir that I found relief and without feeling drunk from the amitryptyline,gaining weight,being sensitive to sunlight, and just recently was told that Elavil can cause you restless legs symptoms. I can't stand it when a doctor minimizes your pain. I mean what kind of life is it when you can't function or participate in life? You are sitting on the sidline while life passes you buy? Everyone here is right don't give up or give in and accept what the Dr's say as golden! And what works for one person might not work for another. I hope you find relief!