I'd posted it 2 months ago? I'd done a double take reading Pono's and Kmeb's recent posts....Made me do that DUH? double-take...

As for Sjorjen's slipping thru the cracks? I thot it was COVERED!? As it is a PRIMARY rather than ACQUIRED immune issue....Have I missed something here? I'm getting slack and pre-occupied...OK beat me with a wet noodle..I'll probably bruise or something-like fall over. {like the Little Old Guy on the trike from Laugh-In...golly talk about dating a person!...mind you I was VERY young at the time...}

No really, Billye, I'd a thot you'd be trying IVIG and wondered why not? Forgive me but it got me thinking that despite all the neuro research being done in Texas, you had to be seeing all the dinosaur age docs? You and Cathie! With some rare exceptions.

But, IF you can continue a private insurance supplemental in addition to the Medicare sometimes...depending on the plans and costs and all, stuffs can be covered, I think...but I've no guarantees on this...I know when I hit that magic age...everything may go down the drain or something! It is NOT a fun thing to look forward to in any shape or form for sure!.. Hugs and HOPE to all! - j

Unfortunately Medicare doesnt make any decisions regarding your coverage based on past when you have them only..... and, depending on your condition, as Dahlek mentioned - the way you covered by Medicare on IVIG depends on your condition.... PID (acquired Immune) is covered under Part B, while acquired conditions like CIPD (which require a higher dose of IVIG to control,) under Part D - so the consumer bears the brunt of the drug cost.... Perhaps if you contact IG Living also, they could be of help? They are very actively lobbying for coverage for all who need this treatment - but restrictions on keeping it even for those of us currently being covered are being tightened - of course your doctor needs to show proof that it is helping - and Plan D's are hiring consultants to continually review all patient charts - so more and more pressure will be put on the docs to produce this - and even then its no guarantee.....

Again, urge you to contact IG Living - they are wonderful and respond almost immediately - and I'll bet if there is any headway being made with Sjogrens - they will know or can direct you to who does....

(and yes, those with private insurance its much easier) Plus, under Plan D unless you recieve financial relief - once you reach catatrosphic you continue to pay a percentage co-pay all year for the med.

I hope you can get this treatment and that it will help!