Very, VERY smart move. - j

I have, only in the last 3 months or so, begun to really experience sweating in any semi-normal sense. Gotta tell you it is both a blessing and a curse? Kind of like going thru menopause all over again, tho I know it aint' so!

Here are some I've actually told to doctors, and others that I should mention to them:

1. Someone trying to take off the end of my big toe with a can opener.

2. Being hit by lightning. In multiple body parts in rapid sequence.

3. Sensation of splinters under the skin, but no foreign object present to cause this feeling.

4. Sensation of having walked through a cobweb, but nothing is actually touching my skin. This generally progresses to feeling as though spiders are crawling on me.

5. When I first step into the heated pool for exercise, my hands and feet burn as though I'd stuck them in a George Foreman grill (which heats on two sides simultaneously).

6. Heaviness in my chest akin to an elephant sitting on it.

7. Awkwardness of movement as though I were a marionette and someone I couldn't see was the puppeteer.

8. Oncoming headlights when I'm driving at night produce stabbing pain in my eyes like ice picks.

9. Nightmares about demons ripping apart my body only to awake and discover that the dream was fake but the pain sensation was real.

10. Fatigue that is actually physically painful, as though someone had come up to me and smacked my brain with a sledgehammer.

Well, THAT was cathartic.

fanfaire

I think I will have to vote with Melody on this one. From what you all have posted, it makes me feel frustrated that there doesn't seem to be any way to help relieve your suffering... It saddens me to see that my online friends experience life like this. I wish so much that there was an answer for this.

Your pain descriptions are very real to me, because of the examples you use to describe how you experience your pain. To me, this gives meaning to your written word and I can imagine how this must feel. Unfortunately, I find most doctors can't seem to identify with the examples... I find the "mask" goes up...

Cathie

I hope that you won't be gone long and that you will find some kind of relief with the Johns Hopkins appointment.

Please keep us posted on your progress and let us know how you are doing.

Good luck to you,
Cathie

1. walking on broken bones
2. ice pick stabs
3. electrical jolt
4. being squeezed by pliers in a toe
5. feeling like i have two pieces of meat attached to my legs (numbness) particularly in water
6 bee stings
7. friction burn
8. throb like you get when you have a finger infected
9. very tight, either swelling of ankles or trying to flex toes or ankles