Sorry I haven't been on the forum much, it is feast or famine....

I have acquired a boomerang child, (again) this time, my son (failed romance, in pieces, needs to sublet the house he can't bear to live in)...this too shall pass.

The boomerang kid needs to know he can not use the guest towels....those are on the towel rack to look pretty. There are a few more rules I will break to him in a few days, when the sobbing stops (his sobbing). The oldest daughter is doing better, but then again, she is the oldest and can take control of things better. She had a break up a few weeks ago, and evenings for me are spent on the phone....counseling, or better yet, saying nothing and just listening. That keeps me out of trouble better.

With November in fulll swing and the darkness of central standard time looming large, not to mention holidays without the 'significant' others, it will be an 'interesting' season for a few of my brood. I do not dare complain of pain or fatigue....I have to allow my family to have those issues right now.

The only thing I wax in my house are a few wood family heirlooms, and I wish I could grow more hair, anywhere. I might look good with a bushy blonde unibrow.

I am awaiting my next neuro appt. which cant come soon enough as they are futzing with my pain meds, which means not having enough of what I need, and junk that doesn't work. I want them to spend a day in my body, and I want to spend a day in their BMWs.

Enough said, my mood is apparent. Please forgive my absences. I try to read to keep up to date, but things on here move at the speed of light.

My son's friend just moved to New York,she's a dancer...So far so good
but I just don't know,I will give him the benifit of the doubt before I put
my money on willl he come back pot...Oh I made it look like his friend
is a dancer... Her boyfriend is my son's friend of many years. (sorry)
I lived in New York for awhile,I was a adncer as was my cousin Bev..
Well I grew up in Mi. she grew up in Hannibal,Mo a slight differance.
We were 17 and thought best to call our Dad's well a little later..
Before they hauled us back,I loved it,my cousin cryed alot...

Anyway my other son friend did his residsidence,in Sloan Kettering,he
loved it but to tired to enjoy...A have you always lived there,just
wondering,don't forget Hey Joe and Glen,but it's big isn't it.
I don't know anymore how big Columbia Mo. is,depends on college
kids,but crime serious crime has hit,well for Columbia Mo. Shoot I
remember the fear in driving to Detroit...Drug dealers from the big cities,
so Bob and I have always locked our doors,but not to many years ago
our neighbors thought that was funny,well this is a bummer.

I like the idea you taking sewing lessons and i to wonder how far,you and Mel
live from each other...Thrse forums are interesting.. Sue Oh and 48 does
your husband drive????

Hey Cyclops!
Good to see you back. Your posts are always so full of really good info.

Sorry to hear about the latest episodes with the kids. I can so relate. My son who lived in Calif. took a job back here in Texas. Serious problem tho, can't sell half million dollar house in Calif. Wife is there, he is here with 2 big dogs. So I can really relate with the issues with the children.

I guess that's what we are here for since we were the ones who gave birth to them.

Stick around and help us out more. Everyone is so busy that there are few of us to post.

Billye

I worked in the Bronx for 25 years and the best way to get there was to drive since almost all trains were geared to traveling towards Manhattan.

But PN changed that. I sold my car in '99. About 3 years ago took some driving lessons so that I wouldn't get phobic. I drove around Montauk in the summer which was relatively safe since traffic was very light.

My younger daughter has been bitten by the show biz bug. She does stand up comedy here and lived for awhile in L.A. We talked about her returning there and I'd stay w/ her for the winter (instead of Fla.) But I don't relish the thought of having to drive everywhere. Maybe they have the equivalent of Access-A-Ride which is NY's answer to ADA travel. I might look into that.

I like the "boomerang" child idea. Yes, they all come back at some point, don't they? I certainly can relate. There's traumatic culture shock when 30-somethings return.

I'd love to join a PN support group. Maybe Mel will PM me w/ the info.

Dear Antonia;
If you contact Johns Hopkins, don't mention your fibro dx. They denied me on this although I told them it was just one of several misdiagnoses. Mayo also refused me but finally accepted me but I have to wait until January w/ Central Pain Syndrome. I don't know the cause but since one of them could be neurotoxicity due to a drug 2 & a half years ago, they originally denied me.
My symptoms have continually gotten worse while going from Dr to Dr, hospital to hospital & not getting any answers. Now I'm just trying to survive 2 more months, which seem like an eternity w/ this pain & other symptoms. I wish you luck.

Antonina, Melody usually posts when the meeting is for pn. If you email her she will be happy I'm sure to tell you about it. She always relays info to us about it and they have speakers too. If you come to Ca let me know. I live in Ventura which is about 90 min from La.
Gramps I understand the going from doc to doc issue and pain. I hope you get some relief soon and keep us updated on Mayo. Welcome too I see your new. Love the name I call my grandpa gramps. Hey are you him?Just kidding.

Thanks for the heads up on omitting Fibro from the med records. How did you manage to outwit the Mayo peeps? You may hold the key to my ultimately being seen there!! Please keep us up to date with your progress. Here's hoping January will be very productive for you!

I see my onco tomorrow and sad to say, he's the doc who went ahead & sent Mayo what he wanted to, without at least letting me in on when & what to send. I will remind him to start the process over again. I heard a teleconference on PN+ chemo last week & the nurse with the most current info works at Sloan Kettering's pain clinic. I called her & she said to get the onco to refer me to a certain neuro there. So I have two tasks: 1) re-submit to Mayo & 2) get a referral to the Pain clinic.

Daniella, I would so love to see Calif. I'm sure the dry climate would help w/ the arthritic sx. I'll keep you posted & maybe we can meet at Spago for lunch soon.

Dear Antonia:
When you re-submit to Mayo, make sure neither you or your doc goes back more than 2 years. Keep your symptoms as recent as possible. Once there, if something farther back is the cause, they can find it. However, if you tell them ahead of time that you suspect it's more than 2 years old, they won't even look at you. I guess they figure if it's more than 2 years old they can't do anything about it so this will affect their success rating. I believe this may be the real reason behind the Johns Hopkins refusal also though they used a questionable fibro dx as the reason. You would think that the longer you have suffered the higher you would rank on needing relief but they must figure we can handle it so why bother! I'm not handling anything, only enduring. Before this, I suffered w/ RSD in both legs since 2001. I can't feel my RSD anymore because this pain overwhelms it. The NIH says there are no known meds or treatment! Opiates have no effect at all! I've already been through the SCS & pain pump w/ m RSD so neither are an option. Good luck to you. My prayers are w/ you.
Gramps

Gramps you sound like me a little. I have pn which they feel is similar to rsd. They wanted to do the spinal cord stimulator or catheter. I tried many meds and even vicadin at one time didn't help the pain. Then the last doc I saw though it may be fibromyalgia or chronic myofacial pain. So if it is the scs wouldn't work. Do you take any meds or anything now to help? Good luck and please keep us updated on Mayo. I too sent my records and they felt they couldn't help me so I went to Cleveland clinic which was so unhelpful.
Antonina yes if you come to Ca please let me know. Its a way different living here that is for sure but your used to busy in NY. I'm from Mi and everything in ca is so fast in comparison.
Feel better to both of you.

My prayers are for you and welcome,very wise you are Sue