hi
I have copied this post over here from the New Member forum in the hope that someone can help

thanks, and again welcome to you antonina

Cheri

Could you give us a little history on yourself? It would help some of our "experts" in this disease to know how to guide you. All of us have histories and some of us have studied extensively the cause of the diseases we have. I myself suffer from Sjogren's Syndrome and Rheumatoid Arthritis. Both can cause neuropathy. Can you tell us some of the testing etc.

How did your PCP present your case to Mayo? Did he just tell them he'd like an appt. for you or did he give them complete medical history? Testing etc. It really makes a difference how the case is presented? Do you have a copy of his referral? Perhaps it should have been sent to the Rheumatology Dept instead of the Neurology. Or even to the Pain Clinic there?

Billye

be useful to provide again your thread of your own experiences in such a case.
That would be the best use to antonia at this point I believe. - j

Which one do you mean? I posted today the threads I did while doing the Mayo trip. (well, I thought I did, but can't find them now, so I seached again. The one where I was preparing http://neurotalk.psychcentral.com/sh...yo+appointment and the one during the trip. http://neurotalk.psychcentral.com/showthread.php?t=280 It took me some searching to find them. Was there another one you remember? That part of my memory is so sketchy because I was so ill. I'll be glad to post it if there was. I am guilty of coming here for help too much, because frankly, I have no where else to go. So when I seach, I find myself all over the place. I'll be glad to help more if I can.

Billye

I think you are helping,no worry..Yes Mayo has a Pain Clinic,that might
be the right direction..And it's always good to hear that someone dosen't
want to give up. My brother got me in ,he can do things on computers
I can't.. Sue