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Old 11-07-2007, 12:06 AM #7
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fanfaire fanfaire is offline
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Join Date: Aug 2007
Location: Little house on the prairie
Posts: 179
15 yr Member
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I am going there in a month, but I will admit it was not easy to get an appointment. Originally, my primary care doc contacted them trying to get me into neuro or rheumatology, and they said it would be six months if they could get me in at all. Desperate, I called the office of a former rheumatologist and begged for a letter of medical necessity, and he said whatever magic words rheumatologists say, and I was scheduled for December 3rd for Mayo's rheumatology department.

The impression I got was that a request from a specialist carries more weight, depending on the nature of what you need to be seen for. Do you have a current or at least recent rheumatologist or neurologist that would go to bat for you? There are probably other ways to get in, but I'm not familiar with them.

I understand your frustration. I've been sick since 1997 with Sjogren's syndrome, fibromyalgia and other ailments, but I've never before had the opportunity to get a comprehensive picture of the extent of autoimmune disease and/or neuropathy affecting me. I suspect there are many many people in a similar situation, and that may be why the Mayo Clinic is so selective about who they will take.

I'm very brain-fogged tonight, so I hope this made sense. There are many others here with more technical knowledge than I that can possibly help too.

fanfaire
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Sjogren's, neuropathy, gastroparesis, diabetes, celiac, Raynaud's, hypothyroidism, fibromyalgia, chronic myofascial pain, periodic limb movement disorder
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