Seems to be a problem for me. Since I restarted with this form of B-12 I've seen a huge jump in my energy levels and a decrease in my PN symptoms. Somewhere in these forums I have a list of all the things I was taking. No time to hunt it down now but I'll be looking at that soon and will begin adding one vitamin or supplement back in at approx 2 week intervals. So, bottom line for me, it seems that I have issues with absorbing B-12 from foods and my digestive tract. This just really brought this issue home to me since I restarted the B-12.

If anyone recalls, I suddenly hit a spot where *something* I was taking was causing a major increase in symptoms. I had started several new supplements at the same time and couldn't pin down precisely what was causing the problems. So I stopped everything. And didn't restart (other than Vit-C and E that I've always taken) any of the others until I had the better form of the B-12. Also, I'm taking much more Vit-C than I've ever taken before. I've gone as high as 8000mg a day with no backlash, so to speak. So, now we'll see what we can see.

Now THAT is good news!!!

Mel

How much B12 are you taking?

Mary:

I know your question was to Brian, but I just wanted to share my own info on the B-12. I take 5000 mgs sub-lingually every morning, on an empty stomach.

It did the trick. I'm one of the lucky ones. It did nothing for my husband but he's not a diabetic, and in my opinion, he wasn't on it long enough to say "oh this is not working, you take it". But I can't argue with him. So I take it and it does the trick for me.

Sure, I get flare-ups but only when I get stressed. On the average, it did the trick for my burning.

Melody

Thanks Melody - I'm currently taking 1000 2X a day and I am thinking about bumping up to the 5000. Do you also take a magnesium supplement?

Absolutely, and you can thank Mrs. Doubtfire for that.

She said on these boards:

Melody: Magnesium, Magnesium, Magnesium.

so Melody learned, learned learned.


lol

I'm taking 5000mcg a day. That's the same amount I was taking of the Cyanocobalamine. Which apparently wasn't doing me much good. Certainly not enough. I also take a Super B-Complex with that. I take it on an empty stomach as the good people here instruct.

I'll tell you, this board has been a lifesaver for me. When I first found the board it was about 2:00 in the morning, I was up because of my pain (it was soooo bad!) and sitting here crying. Since finding this board and using the information Rose and other's have given me my pain has decreased by about 90% overall. I no longer have trouble getting to sleep because of the pain. I still have a certain level of tingling, numbness and a bit of the burning sensation but nothing like what I was having!

I remember your previous post as im sure I replied to it as I also suffer the same problem,ie that some supplements definatley make the neuropathy much worse. I still cannot get to the bottom of why supplements like acetyl l carnitine/ calcium and magnesium / thiamine and benfotiamine (taken separately of course) bring on the numbness/altered sensations when they are meant to help the neuropathy, it isn't a question of the symptoms being a sign of the neuropathy getting better either unfortunately,they really do make it worse, I have gone on and off these supplements quite a few times to make sure it wasn't just a coincidence that the sensations got worse,they really do affect it. Mrsd mentioned the my electrolytes may be out of balance but I am not sure how to go about getting these checked. I would be so grateful if anyone could shed any light as to maybe why these supplements seem to be aggravating the symptoms.... One thing I do wonder about is the fact that I may have axonal damage by the looks of things and would this mean that supplements would not help this type of neuropathy....

Its excellent news that the b12 has worked well for you and I hope it continues to help you

Thanks! Me too!!!

Yes! I recall your posts too because it was sort of an 'ah-ha!' moment for me. It *wasn't* just all in my head! Nice to know I'm not alone. I, too, would like to know more about the electrolyte issues and why it seemed that one or some of the supplements I was using was making things worse.