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Old 11-16-2007, 11:24 AM #1
Monica de Lara Monica de Lara is offline
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Monica de Lara Monica de Lara is offline
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I have the vibrating cell phone sensation too. Usually in feet and ni my calves, sometimes i touch the part that is vibrating and it goes away. This type of sensation in completely normal. I agree with all, just ignore the call
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Old 11-16-2007, 12:28 PM #2
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For Megan - Yes - I'm very familar with the fatigue problem. I am a retired military man and have exercised all my life - even after the onset of PN over 20 years ago. I am no longer able to run nor do the heavy duty calisthenics as I will soon be 76 years old. I still do a few basic exercises and walk a mile or 2 most mornings. Although my pain is controlled and reduced by the Fentanyl patches, this and my age prevent me from maintaining the excellent health I once enjoyed so fatigue remains a problem but not one I dwell on. Fortunately, I don't have and never have had a "stomach problem". Food, meds, etc never affected me adversly and I am very fortunate in that respect.
But, let me be clear about something. My PN pain is excruciating and if it was not controlled I would be one miserable SOB. Untreated and undertreated pain is a major problem suffered by PNers and those with many other conditions. Fortunately, more and more physicians are learning (and accepting) that pain is a legitimate medical condition and are treating their patients accordingly. So, if you suffer from chronic moderate to severe pain you MUST find a physician who is willing to work with and treat your pain. If she/he won't then fire them and find one that will.
I don't know what kind of "stomach/gut issues" your talking about but a good gastroenterologist should be able to help you with it. Again, keep looking until you find a doctor that will treat your condition. I am not trying to minimize your fatigue/stomach problems - just urging you to find proper help. Good luck and keep us informed.
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Old 11-16-2007, 07:50 PM #3
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I agree it is important to address chronic pain and to try to do what you can to either get rid of it or make it manageable. Unfortunately, I have exhausted my options because my gastroparesis (which I suspect is related to the PN) prevents me from taking most pain medication, and I am allergic to adhesives, so no patches. So I make do with topical remedies, alternating rest with activity, and mostly grinning and bearing it.

It can be quite difficult to find a doctor who knows their stuff and will take you seriously, but I agree it is worth the effort. And I am hoping the Mayo guys will have some treatment ideas that I can tolerate so I can do things that will help me even more, like walk further.

It would be nice to get rid of not only the vibration stuff but also the really sharp sudden pains that make me yelp.

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