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Old 11-25-2007, 09:50 AM #1
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Good Morning Mrs. D,
Thanks for your post. I'll mention to the dr. about the amount of meds I'm taking and the Osteoporosis, I sure don't need that on top of everything else! I'll look for your posts about your Thyroid problems. Thanks again!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 11-25-2007, 12:59 PM #2
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Hi. Even if not from this med I would encourage you to get a bone scan if you haven't. I have osteo and am 29 and my mom has it too and is on meds for that. I know its not going to fix your other pain issues but at least may prevent other issues.
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Old 11-25-2007, 06:22 PM #3
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I take both of those meds, though I take a slow release Cytomel which is compounded. I can't say that correcting my thyroid changed the neuropathy, but it still makes a huge difference in how I feel.
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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Old 11-25-2007, 07:21 PM #4
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Default hI ROXIE

I HAVE BEEN ON LEVOXYL FOR YEARS, IT WAS IT WAS LOWERED 1 YEAR AGO, ,HONEST DON'T KNOW. IF IT HELPS ARE NOT BEEN ON IT YEARS.
wHY DID HE SAY IT WOULD HELP pn. I'M BEHIND AND IN WORST PAIN I'VE
EVER BEEN IN. fRIDAY bOB HAD SURGERY,HE'S FAIR..i KOW SHOES OFF,
BROTHER FROM MI. IS BACK HOME,SO IS SON AND DAUGHTER-IN-LAW.
TOMORROW i GO TO SE dR. JOHN MCdONALD A WASHINGTON VERY WELL
KNOWN NEUROLOGISH IN BARNES ST. LOUIS AREA..HE HAS BEEN A DR. OF MINE FOR A FEW YEARS..ALSO CHRISTOPHER REEVES,MY BROTHER AND FAMILY INSIST,GOOOD RESON'S. ROXIE WILL PUT IT ON MY LIST..

i WAS A BIT AFRAID WHEN THEY LEFT CRYING TO BE HONEST..HEY MOM HOLD YOUR GRANDBABY,THE 1 I HAVEN'T SEEN,LITTLE OZZY,WITH A NEW TOOTH,
AND MY SON GRADY,MY BABY. THANK YOU,ALSO YOU KNOW WHO YOU ARE
FOR YOUR OFFER,YOU ARE A BLESSING. SORRY ROXIE AND ALL FOR BUTTING IN. GETTING A THOROUGH CHECKUP NEXT WEEK,WEEKEND I SCREAMED AND BIT MY LIPS...WHEN OZZY SMILES YOUR GOING TO GET BIT. THANKS FOR UNDERSTANDING,IF YOU DON'T THROW ME OFF...lOVE YOU ALL,THANKS SUE
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Old 11-25-2007, 07:39 PM #5
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I have been on thyroid medication since I was in my 30's. I take Synthroid 75MCG. My doctor has me do blood work at least once a year to make sure the dosage does not need adjustment.

Roxie, did your doctor put you on this medication without a blood test? I guess I don't understand the correlation between thyroid (high/low) and PN. My arms and legs ache sometimes, but I just attributed it to working outside or just the PN condition.

I was only diagnosed about 7 years ago, so I don't believe my low thyroid played a part in my PN.
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Old 11-25-2007, 07:52 PM #6
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Default Same Here

I DON'T SEE WHY ARE HOW THEY WOULD DO THAT WITHOUT BLOOD TEST.
I ALSO BEEN ON IT SINCE EARLY THIRTIES 61 NOW,MY ENDNDRO. HANDLES
THAT . mY SON SAID SAME THING INTERESTING. SUE
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Old 11-25-2007, 08:36 PM #7
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Default I had the worst

pain in my feet since before my son was born. It was like walking on broken glass shards, esp in the morning when I first got up.

30 yrs ago I did not think it was a thyroid issue..or even PN. I thought it was from standing on my feet all day for 13 hr shifts, etc.

After my son was born, my goiter grew. But my blood work was fairly normal.
Then I had an episode, resembling a heart attack, which was not the heart at all. But during all those tests, my doctor recommended an Endo. He was rude and said it was all in my head...but relented to a technicium scan because he felt the swelling. The rest is history... after being raised to 75mcg Synthroid, I stablized there. My feet went back to normal after about a year. In the beginning there was a lot of tingling--which was them waking up.
My carpal tunnel improved also.
http://thyroid.about.com/cs/symptoms...s/a/carpal.htm
http://www.tsh.org/askthedoctor/carpaltunnel.html

The way it works is that hypothyroid people produce a tissue substance that clogs the tarsal and carpal ligaments. This creates the PN symptoms.

Even today if I have alot of edema, from overusing salt etc, I get some symptoms back. So I use a diuretic about twice a week to control that.

My last TSH was 1.24, down from 2.0 from a year previously. As long as it is below 2, I don't push for increase. I know the connection between over use of thyroid and osteoporosis.
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Old 11-25-2007, 09:00 PM #8
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Default Mrs D

THANK YOU FROM THE BOTTOM OF MY HEART,YOU JUST DON'T KNOW
HOW HELPFUL YOU HAVE JUST BEEN TO ME. bLESS YOU ALL. sUE
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Old 11-29-2007, 07:53 PM #9
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This has all been interesting to me. I have some achiness in my ankles and arms. I have what my doc described as a mild case of hypothyroidism. He wanted to put me on Armour Thyroid, but it caused bloating. We tried Thyrolar, which worked well, but then there was some problem getting it. Now, I take Synthroid. He referred me to this website:
http://www.stopthethyroidmadness.com/
There is the possibility that I might take additional Iodine.
BTW, prior to taking the Synthroid, I had gained weight and had trouble with my hair falling out.
I switched to a mild shampoo (no detergents) and got on more and better vitamins. Also, exercised and ate healthier foods. This, combined with the Synthroid...seem to do the trick in terms of my hair and overall good health.
However, the entire thing has left me wondering about the Thyroid and its need to be monitored. IT seems if it is off, even just a little, it can cause a lot of problems.
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Old 12-01-2007, 12:37 PM #10
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HI All!
Thanks for all the great info about thyroid meds. I'll check out all the links you provided. I see my dr. on Tues and I'll be interested as to what he has to say about the thyroids meds helping with my severe achiness in my arms and legs. I still feel SO draggy, I'd love to have some med that helped with that!
I've had a full body scan so I know my bones are ok at this point and I've had MANY blood tests for T3 and T4 before that all showed my thyroid was ok.......as far at that can tell...tho he said that doesn't all prove anything! All this can really drives ya nuts!
I hope everyone is having a great weekend. It's almost 80 degrees, sunny and beautiful in Houston this weekend and I love it! Take care!!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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