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#1 | |||
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Member
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Hey All!
I'm just wondering if any of you are taking Thyroid meds that are helping with your PN? I've been having lots of achiness in my arms and legs. The last time I saw my dr. he said he wanted me to try these 2 Thyroid meds...Levothroxine and Cytomel. I'm trying them for a month and then reporting back to him. Well after being on them for 2 weeks my pain is much less! I'm still taking Lyrica but it's not like I have to take it around the clock.....every 4 hrs like I have been doing because the pain was SO bad. So anyway.....I guess this means I'm lacking some Thyroid in my system and now have to take 2 more prescriptions....like I don't take enough already...$$$! But I'm happy to have less pain.......I can't seem to win!
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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#2 | |||
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Member
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I've been on Armour and Cytomel since 2002. I notice no difference in the neuropathy. But then, I feel like I need a disclaimer that says: results not typical.
![]() fanfaire ![]()
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Sjogren's, neuropathy, gastroparesis, diabetes, celiac, Raynaud's, hypothyroidism, fibromyalgia, chronic myofascial pain, periodic limb movement disorder |
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#3 | |||
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Member
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HI Fanfaire!
Well I didn't expect any results from my taking the thyroid meds but they do seem to be helping with my pain. I just hate taking 2 more prescriptions since I take so many already. All of my tests have come back ok.....but I guess that doesn't always show a problem.
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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#4 | |||
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Wisest Elder Ever
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was mostly due to hypothyroidism.
I've posted that many times, so I won't go into it again. I also have some arthritis, but that does not cause nearly the pain I had when my thyroid was messed up. You want to make sure you do not take TOO much replacement hormone. That leads to osteoporosis. So keep it tightly controlled.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#5 | |||
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Member
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Good Morning Mrs. D,
Thanks for your post. I'll mention to the dr. about the amount of meds I'm taking and the Osteoporosis, I sure don't need that on top of everything else! I'll look for your posts about your Thyroid problems. Thanks again!
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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#6 | ||
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Magnate
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Hi. Even if not from this med I would encourage you to get a bone scan if you haven't. I have osteo and am 29 and my mom has it too and is on meds for that. I know its not going to fix your other pain issues but at least may prevent other issues.
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#7 | |||
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Member
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I take both of those meds, though I take a slow release Cytomel which is compounded. I can't say that correcting my thyroid changed the neuropathy, but it still makes a huge difference in how I feel.
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LizaJane . --- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009 ---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst |
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#8 | ||
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Senior Member
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I HAVE BEEN ON LEVOXYL FOR YEARS, IT WAS IT WAS LOWERED 1 YEAR AGO, ,HONEST DON'T KNOW. IF IT HELPS ARE NOT BEEN ON IT YEARS.
wHY DID HE SAY IT WOULD HELP pn. I'M BEHIND AND IN WORST PAIN I'VE EVER BEEN IN. fRIDAY bOB HAD SURGERY,HE'S FAIR..i KOW SHOES OFF, BROTHER FROM MI. IS BACK HOME,SO IS SON AND DAUGHTER-IN-LAW. TOMORROW i GO TO SE dR. JOHN MCdONALD A WASHINGTON VERY WELL KNOWN NEUROLOGISH IN BARNES ST. LOUIS AREA..HE HAS BEEN A DR. OF MINE FOR A FEW YEARS..ALSO CHRISTOPHER REEVES,MY BROTHER AND FAMILY INSIST,GOOOD RESON'S. ROXIE WILL PUT IT ON MY LIST.. i WAS A BIT AFRAID WHEN THEY LEFT CRYING TO BE HONEST..HEY MOM HOLD YOUR GRANDBABY,THE 1 I HAVEN'T SEEN,LITTLE OZZY,WITH A NEW TOOTH, AND MY SON GRADY,MY BABY. THANK YOU,ALSO YOU KNOW WHO YOU ARE FOR YOUR OFFER,YOU ARE A BLESSING. SORRY ROXIE AND ALL FOR BUTTING IN. GETTING A THOROUGH CHECKUP NEXT WEEK,WEEKEND I SCREAMED AND BIT MY LIPS...WHEN OZZY SMILES YOUR GOING TO GET BIT. THANKS FOR UNDERSTANDING,IF YOU DON'T THROW ME OFF...lOVE YOU ALL,THANKS SUE |
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#9 | |||
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Member
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I have been on thyroid medication since I was in my 30's. I take Synthroid 75MCG. My doctor has me do blood work at least once a year to make sure the dosage does not need adjustment.
Roxie, did your doctor put you on this medication without a blood test? I guess I don't understand the correlation between thyroid (high/low) and PN. My arms and legs ache sometimes, but I just attributed it to working outside or just the PN condition. I was only diagnosed about 7 years ago, so I don't believe my low thyroid played a part in my PN.
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diana |
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#10 | ||
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Senior Member
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I DON'T SEE WHY ARE HOW THEY WOULD DO THAT WITHOUT BLOOD TEST.
I ALSO BEEN ON IT SINCE EARLY THIRTIES 61 NOW,MY ENDNDRO. HANDLES THAT . mY SON SAID SAME THING INTERESTING. ![]() ![]() ![]() |
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