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#1 | ||
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Magnate
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Ok. So this was another pain doc apt. He is also specializes in rsd. Now the one I saw in Cleveland said I need a catheter so I could do extreme pt. Then the one in ucla said a scs. Now this doc who deals with rsd wants to try a epidural nerve block to see how I respond to see if it is rsd. The docs I have seen thought it may be similar to rsd because of my high pain level though no change in color etc. I asked him too about fibro and he said if it were that he could do some lidocaine I think infusion. I gave this doc all my records which he didn't look at or ask about my health background. He just asked how this started. I tried to be organize and represent myself well.I started to ask my list of ?'s and he said he would ask the ?'s .I did get to ask some of my ?'s after I pushed. I asked about there being a connection between my out of it and chest pressure. Also that I am so sensitive like I hurt my back and now it goes up and down so much. Also all the infections like eye and ear.How my pain is up and down and when I'm on them so much about damage which he said its not too and I need to be on them. He really only wanted to deal with legs but he didn't look at them or have me take off my sock. I wouldn't allow touching cause of my pain. I asked about meds but he said I am resistant which sems to be true since I have tried neurontin,lyrica,elavil,tramadol,cymbalta,liodacin e patch,vicodin. The plan of the block,pt,and psych sounds ok but I felt unheard and really rushed and like he didn't even look at my test results or mri's. He also said that the other docs know little about rsd and just because I don't have all the symptoms doesn't mean it couldn't and that is what the block is for. I was curious about after the first block but he said he didn't want to discuss further till after the first. You know at the start of this I would of done anything to take away my pain. Now with multiple dx's and docs wanting to do different things I'm confused. The doc even asked me why my eyes were bugged and I said i just have so many opinions. I drove more then 90 min each way and they spend so little time. He said there is no side effect other then infection. Is this true because the catheter and scs doc seemed to say the same and that turned out untrue. I have had a horrible week and now have an eye infection which the doc made worse so I had to go back and maybe again which doesn't help this with docs and mistakes. Also all the things to now between the meds,pt,nerve block in my foot has made things worse or other side effects I'm more apprehensive.Any ideas?
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#2 | ||
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Senior Member
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You have it right up in the left hand coner stressed,you have to slow down
down take a deep breath...We all know when i get stressed,I confuse everyone..We all know your pain,but it sounds like you end up in more pain,from all these Drs.. I tired so maybe,i'm not understanding,or I lost something when i got sick and puter went I missed something..So my kids are leaving tommorow, when there done with tests will read your past posts...Question why would you go through all that ,I guess i'm not understanding sounds like your adding to you pain,this is a not blaming you...I'm just worried,on another post Billye told me to cut out part of pillow over my tailbone,something so simple is really helping...Yesterday I wanted to pull my hair out, now I have desided to keep it...Pain is terrible,and stress makes it worse.. When you wouldn't let him touch you ,what did he say,how did he react??? Darn you know I care...Some drs. judge by the size of records,or sounds like he has a screw loose... ![]() |
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#3 | ||
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Magnate
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WE all know that you hurt, you just have to find that right doc! Hang in there, you have been thru the food processor and you are STILL writing in complete sentences after all. That in itself is one super achievement!
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#4 | ||
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Magnate
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Thanks guys. I'm going to call and ask more ?'s to the doc. You know I don't even know if he does the epidural block cause he said I go across the street or if there is time I have to stay after for a short recovery. These simple things that a doc could say would make me feel more at ease. By the way anyone here have these and any problems? By the way I agree with the stress factor. I swear I'm getting wrinkles and grey hair from the stress and worry. Trying to relax though.Hugs back to you guys!
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#5 | ||
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Senior Member
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Have you talked to the rsd posts,i read them,they are a group,who are
smart,been there and done that. Bob and I have had 2 each of those E thinkys,not awful,easier on him very tall and lean..He gave you no information other then you go across the street to get it...Pain clinics biggest fastest growing business in Med. why people in pain...Seems like when I was your age alot of Drs. had that,I do the talking thing..Then you get 50 treatment is a little different. Then you get older they want to kiss you on the cheek while putting you into the nursing home...Funny I was a nurse, got to drive other nurses nuts,when there taking care of you. And look out if aDr. get's a infected hangnail..If I remember you can go home but don't think they will let you drive....Do they have a e-mail adress perhaps it would be better to e-mail all your questions..Works for me.. Hugs Sue. |
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#6 | ||
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Magnate
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Hi. You know I think I will copy this post and put it there. I have made some posts there but so many of my symptoms other then the horrible pain are not rsd. Like the change in color,hair so on. He did say you can just have one of the symptoms. I'm waiting to call back the docs. I agree at my age I feel treated differently. I also look like I'm 20 though 29 but really with what I have been through in my life 70. I would doubht highly if a 50 year old man was in his office he would of said why are your eyes bugging out of fear or say I will ask the ?'s not you. I know all here have there doc problems so I'm not taking away from you guys and I feel for you.
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