Well today I saw the rheumie because I'm feeling a pop in the bone in the groin. He ordered a new xray and guess what.....? three weeks after the camera pill test, the %#$F@ thing is still there. Just spoke with the GI doc's office and they are putting me on laxatives for the weekend and then a new xray on Monday and they will then determine what they will do. I saw the xray. The tech had no idea what it was. Thought she'd done something wrong. It was immediately identifiable to me. Looks like a little sputnick.

So what else will happen.

Oh yeah, forgot to tell you. The main bone in the sitting area inside the sitbone is broken. The rheumie is sending me to an ortho but advises against surgery. Says the pins will pull out of my bone. He says bones will heal. Wants me to spend the next 6 months in bed.

Not in my vocabulary. Oh yeah..forgot to tell you again. My neuropathy is killlinng me!! Seems worse. But the worse part is in my sit area.

Billye

ouch,ouch, I'm so sorry it hurts I know every time i move i'm afriad...
I don't know why but my PN is really hurting as well,weather,time
change,pain!!!Now youngest son has Shingles,now he's wishes us all well..
Hugs to all feel better Billye and all Sue

Billye, that sounds unbelievably painful. Your attitude is so good given the exteme problems you have. You are one in a million! I'm pulling for you!

I have to ask, is IT still working? Has it told anyone anything useful?
Oh my! Where is Cheryl, Crytears? I believe she had that experience....I guess, I just want to know that it was all worthwhile or something.
HUGS 's - j
Also, ummm? any idea if it will ever leave? If not, sure sounds like an unwanted houseguest?

Dahlek,
the camera pill found no problems in the middle intestinal area but apparently made the curve to drop in the colon and then got stuck. If it doesn't pass this weekend, I'm looking at either a colonoscopy or surgery to retrieve the thing. It just depends where the capsule is stuck. They said the battery has run down by now and isn't sending anything. But if they don't get it out, the battery will eventually corrode and hurt me. This was a possible problem and I had to sign papers acknowledging that. It seems that if it can happen,...it will to me.

Thanks for all the good wishes.
Billye

but obviously I've swallowed some sort of Propaganda Pill? [Sorry, couldn't help it?]
Wouldn't one 'think', that taking something like another 'colonoscopy' prep would get it out? Now, if that glop doesn't work [I mean when you do a 'prep' well, far more happens than you'd ever imagine?]...then worry? In the meantime, I guess, you can always tease the docs that you got 'stuck' with them? And now they are 'stuck' with you or something. Tho I suspect 99.99% of gastros have absolutely NO sense of humor about all they do.
I just hope it gets outta the way! Hugs and good thoughts.

Also, a couple of big SIGHS! Somehow they seem appropriate for this situation. HUGS again - j

Billye:

Oh my god, you poor thing. You go and get a camera job, and it's still there. A little sputnik in your tummy.

It will pass. Just be like the little Engine that could, keep thinking: "I think I can, I think I can".......

Holy, um, garbage. Maybe with the Sjogren's you didn't have enough moisture in your digestive system to propel that camera properly? I'm shocked that they make you ingest something that can CORRODE in your body if it doesn't go all the way through.

Not surprised your neuropathy is worse, not with yet another break in your body giving you a pain concerto. And they can't do anything about it??? Wish I had some helpful suggestions, but this is way out of my league.

Giving you a VERY gentle cyber hug.

fanfaire

Billye,
I'm so sorry that your camera pill is stuck and can give you more grief and pain on top of your fractures. I hope the colonoscopy prep will get rid of the fool thing for you so you have one less aggravation to delal with. I'm sure your PN is in high gear w/ all that you have to deal w/ but maybe the collective prayers and good wishes from the forum will give you a liitle relief.
Hopw all goes better for you. As Fanfaire did I'll send you a very gentle too.

Alkymst

billye, i asked our dr...who is also a friend about this. he said he had never heard of a person not being checked after they downloaded the pictures from the pill. that within a certain time, i think he said 48 hours, they should have given you laxitives. and knowing that you have Sjogren's it probably should have been to begin with.

you might want to check into this more. for legal reasons. yes they tell you can get stuck. but them not checking that it had passed......wrong...totally wrong.

mega hugs love and prayers.