What strikes me as extremely odd, is that every time Alan saw a new doc, whether it be a GP, rhemo, Neuro (we saw LOTS OF NEUROS), it didn't matter. We would sit down and Alan would tell them his symptoms and I would the say "oh, just for the record, Alan's mom had Guillian Barre Syndrome when she was 45 or so". And immediatly (and I mean immediately), they would say "oh it's not connected" (and I'm talking 18 years of doctor visits, way before I ever found this board), And I've been on this board for a few years now.

But every doctor would look and gently smile, and sadly shake their head no, and say: "His mom's GB has nothing to do with his having neuropathy", and no one ever suggested a lumbar puncture.

I mean, it makes the mind boggle, at the incomplete workup that this man has had all these past years. Even though we went from doctor to doctor, getting tests, and different opinions (and no one ever said "Oh let's do a lumbar puncture", They would just look at me telling them about his mother and the Guillian Barre and say emphatically "no, it's not connected, GB has nothing to do with Neuropathy, and you can't inherit neuropathy and then they would say "Oh, are you sure he's not a diabetic"??

And I would say "he's had every diabetic test known to man, (even Dr. Fred ran the very latest ones). "he does not have diabetes". But then he had the LP and the rest is IVIG history!!. I expect that any new doctor that Alan will eventually see (I mean we all see different doctors eventually, right??), well any new guy will just hear the word neuropathy and say "oh, is he diabetic"??


jeez!!!