Hello! Stumbled across this site while lurking somewhere else. You know what they say about life happening to you while you're busy making other plans (it's in a John Lennon song)?

I've had neurological problems for 10 years, ever since I developed Sjogren's syndrome after a bout of antibiotic-resistant bronchitis. Only about 10 percent of Sjogren's patients develop neurological symptoms, but I was one of the lucky ones, I guess. Peripheral neuropathy, carpal tunnel, cognitive dysfunction, motor skill abnormalities, problems with speech, and oh, so much more.

I've also been blessed with fibromyalgia, which came along a couple of months later following a reaction to a medication. The combination of the two illnesses has been brutal, and I can no longer work. The other ailments appear to be along for the ride.

Am presently in a really nasty flare/exacerbation, whatever you wanna call it. Message boards are a nice distraction, but they are also pretty tiring (so is being awake, lol), so I have to limit my time on the computer. But I will try to pop in once in awhile and see if I can contribute anything worthwhile.

Looks like a really nice site! Kudos!

fanfaire

Hi Fanfare! Wekcome to NeuroTalk!!! We are happy to have you here! I am sure that you will like it here as much as I do. There are plenty of supportive caring people here!! See you around the forums! Dorrie

--do drop into both the celiac/gluten sensitivity forum:

http://neurotalk.psychcentral.com/forumdisplay.php?f=13

and the peripheral neruopathy forum:

http://neurotalk.psychcentral.com/fo...sprune=-1&f=20

Both have people suffering with sjogren's--the latter especially--and there's good expertise there.

Hi fanfaire --

I just had to see what you wrote, with a name like yours... I must say, I like your dog.

Two things come to mind, first is that the more I behaved like your dog while I had tetanus, the more my health improved.

(now I've got to check and make sure your dog is sleeping the way I think I remember him... I have a bit of brain damage and I need to check things a lot to be sure I get them right... and then, of course I never check enough.)

Do you find you're the best first thing in the morning? That's the way it was for me. (Tetanus is a central nervous system disease.)

Second... I wonder if you know whether you have any symptoms of low B12... B12 has a lot to do with nerves and therefore with pain and with a feeling (or not) of well being.

I've been having B12 replacement therapy for ten years... and just wish I'd had more of it to start with...

If you look into it and decide to try it, be sure you read the labels of the bottles at your healthfood store to be sure the one you get has Methylcobalamin... that's the best kind because it's the form our bodies use.

It just makes me smile to imagine you getting it and feeling a remarkable difference.

(it's not a cure all, I don't want to mislead you, but the difference it made to my health has been remarkable.)

Fanfare,

Hello and welcome to NeuroTalk. There are a great number of members and forums here to assist you. NT is a strong support team to all. Looking forward to seeing you around.

Darlene