Small Fiber neuropathy
 

Hi Horseman, I have had small fiber neuropathy diagnosed earlier this year. The pain is bad but what has helped has been the drug "lyrica" which is now approved for the treatment of fibromyalgia. It has reduced (but not eliminated) my neuropathy pain. I recently had a nerve biopsy which showed a remyelinating polyneuropathy which is probably the cause of the small fiber neuropathy. The MRIs also showed signs of brain damage and mentioned that it was compatible with MS. Mention lyrica to your neurologist or doctor as a possible aide to controlling the pain. It has worked well for me sicne I started on it some 4 months ago. Good Luck.

some neuropathies...
 

are temporary. You may be injured by something, and then need to heal.

Others are progressive like the autoimmune ones.

Some autoimmune ones are connected to food intolerances...like gluten.
Others are connected to viral insults.

Some are genetic..

Some are metabolic (low thyroid, and diabetes)

Some are connected to vitamin deficiencies. And may respond to Thiamine (B1) and/or methylcobalamin B12 and Folic acid

Some are due to a cancer that may be hidden somewhere in your body.
(paraneoplastic neuropathy)

Some may be due to chemotherapy for cancer using potent drugs.
AIDs drugs also cause neuropathy.

So some investigating may help you heal. And other investigations may just reveal causes, that cannot be treated.

Neuropathy is a confusing set of symptoms and one label/treatment does not fit all.

Good neurologist
 

Hi,

I assume you live in Arizona too, Horsebrokerance. Dr Sivakumar has an office at the Barrow and on 92st in Scottsdale. His Scottsdale number is 480 314 1007. He is an expert in PN and muscular disorders.

Did they scan your neck to rule our cervical spinal stenosis. You can get leg problems from the cord compression if the stenosis is severe enough. Did they ever do an EMG exam?

Good Luck

thank you everyone
 

yes it has been determined that something is attacking my auto immune system. i have had no trauma to any part of my body, and been tested for glucose, diabetes, aids ect.nothing wrong there. i am currently taking 800mg of nuerontin 4x a day along with cymbalta 2x a day. the nuerontin curved the pain and pain got worst, the increase of nuerontin. im maxed out on it. ive tried lyrica twice and it did nothing at all for me. my heart problems started on july 4th 2006, followed by my surgerys. my father has parkinsons disease and he is the only other person known in my family with nuerological disorder. my heart is a genetic thing that runs on my mothers side.

Can or did you tell us meds your on,i had to go to a Dr. earier and endied
up in hospital...So been there until 10 mins agoo. The reason for asking is the rash you mentioned..Talk to you later when I get some sleep.Welcome
Sue...

In a hurry, so please pardon me if this has already been addressed. Were you given at least 1000 mcg B12 daily? Not 1000%, but 1000 mcg.

rose