i am on my 11th nueroligist, i have small fiber neuropathy i am 39 years old male and i am in extreme pain!!! i can barely do anything, cant sleep cant be on my feet for more then an hour. the pain is 24 hours a day. i have had it since march 1st 2006 at 2:00 pm. my doctors are looking for a reason as to why i have it . i am going to barrows neurological institute right now, and have already been refered to another neurologist there (neuro surgeon).i have alot of symptoms of ms but inconclusive on mris. i do not have diabetes, lopus nor aids. i get relief with hot water and when i dangle my legs. just relief the pain is still there. i have had every test imaginable done on me, and i dont know what path i should be on next. i need suggestions and need to know what to expect in the future if my diagnoses remains just small fiber neuropathy. any suggestions would be great!!!!

What happened on that specific date and time? Did you suffer an injury, take some medicine or do anything unusual that day?

I have idiopathic small fiber neuropathy all over....but I didn't have a sudden onset. My onset was insidious so I thought it was all in my head for quite a while. Your case sounds very unusual. I hope they can get to the bottom of it.

--although an autoimmune molecular mimicry cascade or toxic exposure is more likely for an acute onset (did your condition come on really fast)?

Also, you say you've had major work-ups, but in my experience most people don't get a complete one that easily--take a look at the www.lizajane.org testing charts and compare (and use them to track your test results over time--very good for spotting patterns/trends and for organizing your history for the 12th neurologist).

Hi. Welcome to our little group.

I assume you have had a lumbar puncture.

what did it reveal?.

I assume you have not been out of the country, and they tested for all the obvious stuff such as Lyme?

I also assume they ruled out CIDP Chronic Inflammatory Demyelinating Polyneuropathy?

i am a cashier at a grocery store. the only reason i remember the time i thought i hurt it while working like i pulled a back muscle or something along the line which has proved to be not the problem. i may have had a build up of this problem but not realized it?

yes it did, i was working thats why i remember the time i thought i hurt it there.... yes i have had every blood test. i had metal toxicity hair and bloodwork done. what toxicitys are you refering too?

Were you tested for heavy metals? (specifically arsenic and mercury)

How about B12?

Heat usually makes MS worse.

Only the feet....no where else?

well my list is different but yes i had a spinal tap it came out great????? i had in the past two heart surgerys for wolf parkinsons white syndrome and it has been fixed i hope. the last surgery was in nov 2007 and the first in nov 2006. i have restless leg syndrome, cysts on my lower lumbar, little scoliosis, three minor bulging discs, sleep apthenia. i even have a unkown rash on my back and chest that has been there for now 4 months.