[elsie]

I was diagnosed with PN in July and since then ,not only do I have pain and burning, but my feet get extremely hot to the touch. I have been forced to take my shoes and socks off while I'm out in public to relieve the pain from hot feet. Does anyone else have this problem?

[BEGLET]

Hi Elsie - I know for me - my feet are always like ice - even when its over 100!!!! (I dont feel cold in that heat - but my feet dont seem to get it) Maybe its the pain thats making them hurt??? I'm sure others will jump in!

[shiney sue]

I feel like my feet and hands or on fire and others say they feel ice cold,
and others times they feel cold am tols no they feel warm..And why does
it always seem to start at the feet now it's really baad in my hands.
PN effects people in so many ways..And there are so many kinds of PN
some hurt but most do,some days worse then others , What type of
tests have you had? Sue

[elsie]

I had all kinds of blood work which came back normal as did an MRI. The EMG and NCV findings showed PN "with predominantly axonal features affecting primary sensory fibers."

[dahlek]

blood tests you have had? Have you had a spinal tap done, and if so do you have a copy of the results?
Be sure to know where on the 'testing protocols' you are, or have had done.
Please read the following:
http://www.aafp.org/afp/980215ap/poncelet.html
http://www.lizajane.org/ And
http://www.neuroexam.com/content.php?p=2

These are probably your best outlines of what all should be tested for and why. The LizaJane worksheets are to be used to help YOU keep track of all that's being done [at times it seems very very fast and furious? others slower than turtles] and what else might or might not be tested because of prior test results - It is very hard to get any handle on the pain, let alone what all is happening to you! This stuff will help you get a grasp on the what's and maybe basic whys'....
Hope this helps and keep reading - you mite find something in others' prior posts that strikes a chord with your own instincts....Follow that internal voice of yours...I did, and I do believe it's saved me more than once! - j

BTW, last week while waiting at my NEURO's office for my appt, there was a lady who took her shoes off and was 'resting' them on top...I just said to her: 'Neuropathy?', answer: 'Yes' and I responded: 'Understand' - such a look of relief! At times I feel burning, and the feet are normal, others I feel frozen and they are warm. They can be both warm and BLUE at the same time. I simply try to keep them as comfy as I can and live thru the rest... Actually these days I cannot tell which is better or worse? Hot or Cold? Maybe another day.

[Alkymst]

Elsie,
Just like Kmeb, Sue, and Dahlek, my feet also run from very hot to freezing cold - the cold is almost constant now although there are times that my toes are freezing while the soles and tops of my feet feel as though they are on fire - all the result of the small fiber damage which doesn't show up on standard NCV/EMG exams. These exams measure affects on the large nerve fibers but the best measures of small fiber damage are QSRT and skin punch biopsies - only a few places like Mayo clinics, Johns Hopkins and I believe Cornell-Weill in NYC do the biopsies but they are well worth it for the info you can get.

There's an incredible wealth of info on this forum from personal experiences together with extensive literature searches so you'll find an answer for just about anything or find someone who has the same symptomology - it just takes some time and patience.

It always seems a bit ironic to welcome someone to the forum because it's almost always indicative that they too are suffering from PN but welcome nonetheless - you came to the right place.

Alkymst