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Old 01-02-2008, 04:50 PM #31
dahlek dahlek is offline
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Default Oh Mel! Is that guy still

practicing? Really! Honestly Pain IS GOOD in that it tells US and our bodies something is WRONG with us!
I currently have a good neuro, and some of my bakers' dozen other docs are super as well. My last neuro visit, things were running late [as usual] but folks in the waiting room were all, in concert, not unhappy about the fact that each didn't mind their wait...past their designated appointment time, because when it became their TIME, they would get the time needed! All waiting agreed that the extra wait was worth the quality time each ultimately received. This neuro listens, asks key quality questions and then WE work out a plan to deal with issues. Quite unlike many others I have experienced and likely will in the future.
I have never flaunted 'internet' learning per-se...I simply state that I've read papers found thru the NIH or Pub-Med, and will ask key questions regarding the issues in relationship to ME. I suspect I'm prodding him to do a little bit of 'quick research' himself-just to keep up with me?

Billye, Kmeb? There are patient advocates, they usually charge or deal with legal aspects only... Having a spouse or friend present at times is helpful, but only if they are versed in the 'basics' of our key med. issues. Having that same person interrupt with either 'basic' questions about your med. issues, or inserting ?'s about their issues sets things back A LOT. I ALWAYS have a steno pad [fits in my purse] with a short list of things to cover [starts out as 20+ items] pared down to 4-6 issues. That I have that list, go down it and check off that addressed, with short notes, does keep the docs alert that I am paying attention- so they must.
It IS hard to keep track of all that transpires during an office visit! It is said that one can only assimulate something like 3-7 issues during a certain period of time...I believe that to be true, ergo-those notes.
At times, I feel anger that we all have HAD to become almost as knowledgeable [or more] as the medical profession about our neuropathies and the pain that goes with it.
Please! All! Any and all good, bad and indifferent experiences should be put down here! We do need this key outlet and who knows? Maybe some neuros will actually read it and get a reality check - one can always hope - j
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Old 01-02-2008, 06:25 PM #32
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One of the neuros i went to his office would tell you the time of your appointment is the time that you should call to find out when you really should come in, which is better than sitting in the office waiting for nothing.
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Old 01-02-2008, 06:39 PM #33
dahlek dahlek is offline
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Default Gotta ask?

Did you like him? YIKES - Any which way, the Yikes applies.

My problem w/my last O/V was I'd gotten the time mixed up..and got there a 1/2 hour early...so had to wait an hour..which is what brought up the 'conversations'...
I guess the distinctions are clear if folks don't mind waiting VS get mad at waiting I've waited 1-1/2 hours once because he was held up at the hospital w/a patient following am rounds [we're talking early here?] I didn't mind at all, knowing that it could be ME sometime...tho not soon, IF'n I can help it?

I also figure that there is some kind of 'kindergarten' attendance sheet kept in all doc's offices...as to whether you show up on time or late....I show up early or on time, in the rare hope that there's been a cancellation or the like and I could get ahead of the game. Wishful thinking I guess, but sometimes it does work? - j
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Old 01-02-2008, 11:02 PM #34
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I wish that I could find a good one to compare with,but I could give you all a good run for your money on the bad one,s.This is going to be my year things are going to happen.~~~~~~~Liz M
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Old 01-03-2008, 12:05 AM #35
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Yes i've heard that many times while working Mel,always made me bite
my lip. Or pain,wel it might drive you crazy,but it won't kill you. I;ve
taking care of for years,my husband for 5,my mom and Bob and a
big family of people I only saw and never met..

I wish those who could would help and volunteer to be a avotitate,
and I said volunteer,because now people are making this a buiness.
I finally found a neuro I respect but she shattered her leg,I sat with
her in the hospital,let hr crush my hand,but when she looked at me
with those tears,and told me she was sorry for my pain..If everything
goes right,you know what I mean Joe,it's bad and I'm selfish because I
just don't know if she's coming back..Well it scare's you,and it's hard
to when you can't write to always remember,with her she wrote it done.

And so many Drs. resent tape recorder's it's hard,alot harder than one know's
except those that are alone..Friend's are good,but they can get tired.
But if i have a question i ask a lot of you good people.

In 96 when I was in a head on collision ,a wonderful man asked if he could
help,we talked he's one of the chaplain's...He's at the hospital I go
he goe's with me to my appointment's,in the summer his wife does when
she's not teaching,the look on the Drs. face when The chaplain walks in
we have the same last name is priceless...But being alone is not easy in
big cities it can be a struggle.. hugs to all Sue
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